When yarning about patient-reported measures (PRMs), patient-reported outcome measures (PROMs) and Health Outcomes and Patient Experience (HOPE), focus on what the person needs to know to make informed choices.
You can also discuss what will make them feel safe to participate. Include these points in your yarn to help the person understand what is involved.
Helping people make informed decisions
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Explain why PROMs matter
Let the person know that PROMs are collected to understand what matters most to them, guide care planning and improve health services.
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Participation is voluntary
The person can choose whether to take part in the PRMs program.
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Consent and choice
Each person provides consent before completing PROMs. They can pause and save a survey, choose what they share during discussions, and withdraw consent from the program at any time.
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Privacy and security
HOPE stores information securely and supports the safe, real-time collection and use of PRMs. The platform integrates with NSW Health electronic medical record systems.
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How information is used
Health professionals use PROMs to support individual care and shared decision-making. NSW Health may also use de-identified information to improve services and plan care.
Listening, responding and deciding together
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Access to information
People can view their PROMs through the HOPE Patient Portal or request a printed copy. If someone would like to access their own PROMs information through the HOPE Patient Portal, their healthcare team will be able to set them up to receive information about how to log in via email or SMS. They can choose to share it with other health professionals, such as their general practitioner.
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Acknowledge their responses
Let the person know you have reviewed their answers and invite a yarn about the results. This builds trust and shows respect.
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Shared decision-making
Use PROMs to open deeper conversations and invite the person to help decide next steps in their care.
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Link to local supports
Know local Aboriginal Community Controlled Health Services and other services you can refer to.
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Check understanding
Invite questions and use the teach-back method. It involves asking the person to repeat the information in their own words so you can check understanding and clarify as needed.
More about yarning to make health decisions together.
Use yarning cards to learn more
Health professionals, consumers, family members and carers can use the Patient-reported outcome measures yarning cards to learn more about PROMs.
The 12 cards use questions and answers to spark discussions about how giving feedback on healthcare experiences helps improve the care delivered to Aboriginal people and communities.
If your health service team would like a physical pack of these yarning cards, please contact aci-prm@health.nsw.gov.au.