Resources
Experience based co-design: A toolkit for Australia
A comprehensive toolkit with UK, NZ, and Australian resources and case studies that includes principles, definitions, step-by-step practical guidance, templates and videos.
Source: Consumers Health Forum of Australia with Australian Healthcare and Hospitals Association
Experience-based co-design (EBCD) toolkit
A step-by-step toolkit including videos from staff and patients discussing the rewards of this approach. Note: to access locked content users must create a free account.
Source: Point of Care Foundation, UK
A guide that was refined through healthcare improvement projects in cancer servies, and which includes tools that cover the six elements of co-design.
Source: Waitemata District Health Board, New Zealand
WA Council of Social Service (WACOSS) Co-design toolkit
A toolkit with tools to determine if co-design is appropriate for different circumstances, as well as providing guidance on preparing for co-design in the government and the community sector, checklists, and tools for running workshops.
Source: Western Australia Council of Social Service
A training toolkit for organisations co-designing with people with disability.
Source: People with Disabilities, Western Australia
Guide: Engaging children and young people in your organisation
This resource has been developed to help government and non-government organisations meaningfully and effectively involve children and young people in their decision making.
Source: NSW Office of the Advocate for Children and Young People
A typology and table of methods and techniques to guide choices in the collection of experiential evidence.
Source: Agency for Clinical Innovation
The story of co-design by thinkpublic
An animation illustrating the co-design process.
Source: Thinkpublic
Co-design: Six step process to develop innovative solutions
Co-design: Six step process to develop innovative solutions.
Source: Griffith University, Queensland
This information was originally written as a series of blogs for the Centre for Social Impact and includes an explanation of the features of co-design and five questions for social services exploring co-design.
Source: Ingrid Burkett
Source: Co-create Training
Source: Co-create Training
Key principles for successful co-creation
The key principles for successful co-creation.
Source: Co-create Training
Co-production in social care: What it is and how to do it
This article by the UK Social Care Institute for Excellence provides clarity around the principles and process of what they describe as transformative co-production. It also provides practical examples of the application of these principles.
Source: Social Care Institute for Excellence: UK
One page profile for co-production
An excellent resource for implementing co-production in an organisation, with a one page summary of the key features of co-design and co-production and tips based on first-hand experience.
Source: Think Local Act Personal: UK
Service design toolkit - downloads
Templates to work through the process of service design including: framing, user insights, personas, design scope, ideation, service concept, protoype and test, and feasibility.
Source: Partnership between Namahn (specialise in the design of digital products and services) and Flanders DC (provide designers and design advice)
Mental Health Network : Trauma-informed care and practice in mental health services
A website with resources and literature around the principles and application of trauma-informed care practice in a NSW mental health setting.
Source: Agency for Clinical Innovation
Trauma-informed care and mental health in NSW: evidence series
A report summarising the evidence of the impact of trauma, and the extent to which mental health services in NSW are trauma-informed.
Source: Agency for Clinical Innovation
Trauma-informed events checklist and policy and Protocol
A one-page checklist to address considerations for events where presenters may be sharing their lived experiences of trauma.
Source: Mental Health Coordinating Council (MHCC)
Trauma-informed care and practice (TICP)
This website provides resources such as position papers, training courses and toolkits to upskill clinicians, organisations and mental health policy to have a unified understanding and practice of TICP.
Source: Mental Health Coordinating Council (MHCC)
Trauma-informed care and practice (TICP)
A website with factsheets, videos and guidelines to support healthcare professionals who work with clients with trauma histories, as well as information about complex trauma, therapies, and practice advice.
Source: Blueknot Foundation
What is trauma-informed care and how is it implemented in youth healthcare settings?
A document with information on trauma screening and interventions to support clinicians in using trauma-informed care while working with young people in various mental health settings.
Source: Orygen
This co-design toolkit includes specific strategies for engaging with diverse groups, including Aboriginal peoples (p15); culturally and linguistically diverse communities (p16); children and young people (p17); and people with intellectual disability (p18).
Source: Government of Western Australia Mental Health Commission
A 2016 report commissioned by the Co-design Initiative (an independent voluntary project auspiced by Civil Society) which covers the principles, practice and potential of co-design.
Source: Co-design Initiative
A case study which explores the emergent issues in EBCD participation and implementation in six quality improvement projects conducted in mental health, rehabilitation, blood and bone marrow transplant, brain injury rehabilitation, urinary incontinence and intellectual disability settings by the Agency for Clinical Innovation.
Source: Patient Experience Journal. 6(2): Article 15
A paper which introduces Mental Health Experience Co-design (MH ECO), a peer designed and led adapted form of experience-based co-design (EBCD) developed in Australia.
Source: Medical Humanities. 45:247-257.
Experience-based co-design: Tackling common challenges
An article which discusses the challenges commonly found in EBCD studies (the need to explore power dynamics; commitment to the process; methods to gather experience data; the design of improvements; and variations in implementation and subsequent impact) in the context of five examples from Australia.
Source: The Journal of Health Design. 3(1):86-93
A systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement.
Source: Patient Experience Journal. 3(1): Article 15.
An article that examines co‐creation, an increasingly popular approach to aligning research and service development so as to avoid ivory-tower research that fails to be implemented.
Source: The Milbank quarterly, 94(2), 392-429
Patients and staff as co-designers of healthcare services
An article that examines why patients can and should take a more direct and ongoing role in identifying, implementing and evaluating improvements to healthcare services using examples of successful projects.
Source: BMJ. 350: g7714
Expressions of interest example
This is an example of content that has been used to call for expressions of interest for consumers to be involved in a co-design project with the Agency for Clinical Innovation.
Source: Agency for Clinical Innovation
Expressions of interest template
This template can be used as a guide when you are developing content to call for expressions of interest for consumers to be involved a co-design project.
Source: Agency for Clinical Innovation
Participant information sheet template
This template can help to guide health services when providing information to consumers about how they can be involved in a co-design project.
Source: Agency for Clinical Innovation
Participant consent form template
This template can help to guide health services when seeking consent from individuals to be involved in a co-design project.
Source: Agency for Clinical Innovation
This template can be used to help you outline an approach to consumer partnership that best meets your needs.
Source: Agency for Clinical Innovation
Readiness assessment templates
Co-design co-facilitator readiness assessment template
Source: Agency for Clinical Innovation
Co-design team member readiness assessment template
Source: Agency for Clinical Innovation
Organisational co-design readiness assessment template
Source: Agency for Clinical Innovation
Reflection templates
Gather the experience tool template
Source: Agency for Clinical Innovation
Individual reflection on co-design capabilities template
Source: Agency for Clinical Innovation
Team reflection on co-design capabilities template
Source: Agency for Clinical Innovation
Managing difficult situations with consumers
Source: Agency for Clinical Innovation
Resources for the Gather phase
Participant experience focus groups: Facilitation guide
Source: Agency for Clinical Innovation
User needs and research design standards for NSW Government
Source: Digital NSW
The Australian Institute of Aboriginal and Torres Strait Islander Studies Code
Source: Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS)
Source: Agency for Clinical Innovation
A data collection tool enabling understanding of a shared experience.
Source: Agency for Clinical Innovation
Storytelling is the oral, visual or written sharing of our stories and experiences with others. This is a tool to guide ACI Networks, Taskforces and Institutes on gathering consumer, family and staff stories when designing, implementing or evaluating improvements, activities, products and services
Source: Agency for Clinical Innovation
Resources for the Understand phase
A tool to understand the stages, emotions and factors influencing a person’s experience from their perspective. This is helpful for identifying opportunities for improvement and managing scope.
Source: Agency for Clinical Innovation
Along with the Personas tool below, these tools provide a continued reference point of the people you learned from in the gather phase; including their emotions, needs and motivations. These are helpful for engaging stakeholders outside of the project team, and if you have not been able to have consumers a part of your core project team every step of the way.
Source: Agency for Clinical Innovation
A tool to use after the gather phase to deliberately reframe your original project problem statement to a perspective that will generate lots of ideas.
Source: Agency for Clinical Innovation
Source: Agency for Clinical Innovation
Resources for the Improve phase
A visual representation of an idea or prototype, enabling testing with prospective users.
Source: Agency for Clinical Innovation
My rehab, my journey - Gadjigadji aims to support rehabilitation clinicians and health staff to create a culturally safe environment for Aboriginal people in their ward.
Source: Agency for Clinical Innovation
Resources to enhance engagement
The Participation Ladder - A consumer/survivor lens
This resource has been developed by Expert by Experience and Systemic Consumer Advocate, Indigo Daya. When using or referencing this document, please ensure correct acknowledgment is attributed.
Source: Indigo Daya
Rehabilitation Patient Stories
Source: Agency for Clinical Innovation
Dementia Carers’ Experience Videos
These videos explore the experience of dementia from the perspective of carers.
Source: Agency for Clinical Innovation
Stroke: Written by the Mob for the Mob
This series of short videos by people from the Peel and Mehi Aboriginal community, predominantly Gamilaraay/Kamilaroi Aboriginal communities, describe their experiences of Stroke.
Source: Agency for Clinical Innovation
Improving the experience of hospitalisation for people with intellectual disability
Watch Daniel's story and his experience of hospitalisation. In this video 'Improving the experience of hospitalisation for people with intellectual disability'.
Source: Agency for Clinical Innovation
This collection of patient story videos highlights the importance of self-management and coordinated care to support people living with chronic conditions.
Source: Agency for Clinical Innovation
Consumer and Community Involvement
AHRA’s Consumer and Community Involvement (CCI) Initiative is a program of work which aims to embed the involvement of consumers and the community in health and medical research policy and practice.
Source: Australian Health Research Alliance
Statement on consumer and community involvement in health and medical research
The Statement, co-authored by the NHMRC and the Consumers Health Forum of Australia (CHF), aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
Source: National Health and Medical Research Counci
Academic Health Science Centre - Consumer and Community Invovlement modules
Consumer and Community Involvement is a series of six self-paced online modules, providing general and practical information and strategies to meaningfully conduct and embed consumer and community involvement in research and healthcare improvement projects.
Source: Monash Partners
Consumer and Community Participation in Health and Medical Research - Fact sheets
Short, simple resources to support the implementation of consumer and community participation in health research.
Source: University of Western Australia and Telethon Kids Institute
Community Engagement in Research toolkit
The toolkit offers community members and researchers practical resources to support community involvement in health and medical research and research activities.
Source: Health Translations SA
Training - Partnering with Consumers in Research
A centralised list of training opportunities for both consumers and researchers in how to partner together in research.
Source: Health Translations SA
Source: Agency for Clinical Innovation
Source: Agency for Clinical Innovation
Source: Agency for Clinical Innovation
Co-design with Aboriginal communities
Source: Agency for Clinical Innovation
Expression of interest template
Expressions of interest template - Arabic
Source: Agency for Clinical Innovation
Expressions of interest template - Chinese (simplified)
Source: Agency for Clinical Innovation
Expressions of interest template - Chinese (traditional)
Source: Agency for Clinical Innovation
Expressions of interest template - Korean
Source: Agency for Clinical Innovation
Expressions of interest template - Vietnamese
Source: Agency for Clinical Innovation
Consent form template
Consent form template - Arabic
Source: Agency for Clinical Innovation
Consent form template - Chinese (simplified)
Source: Agency for Clinical Innovation
Consent form template - Chinese (traditional)
Source: Agency for Clinical Innovation
Consent form template - Korean
Source: Agency for Clinical Innovation
Consent form template - Vietnamese
Source: Agency for Clinical Innovation
Co-consumer participant information sheet
Co-consumer participant information sheet - Arabic
Source: Agency for Clinical Innovation
Co-consumer participant information sheet - Chinese (simplified)
Source: Agency for Clinical Innovation
Co-consumer participant information sheet - Chinese (traditional)
Source: Agency for Clinical Innovation
Co-consumer participant information sheet - Korean
Source: Agency for Clinical Innovation
Co-consumer participant information sheet - Vietnamese
Source: Agency for Clinical Innovation
Center for Nonviolent Communication
The Center for Nonviolent Communication (CNVC) is a global organization that supports the learning and sharing of Nonviolent Communication (NVC), and helps people peacefully and effectively resolve conflicts in personal, organizational, and political settings.
Source: Center for Nonviolent Communication
Working with consumers and communities - HETI Course
A website which examines the benefits of working and partnering with consumers and communities and identifies tools and resources which can be used to engage consumers according to different strategies and methods.
Source: NSW Health Education and Training Institute (HETI)
Experience Based Co-design Infographic
Source: Agency for Clinical Innovation
2017 Patient Experience Symposium
The 2017 Patient Experience Symposium aimed to bring people together to improve the experiences of care for people from NSW. The Symposium provided the opportunity for people to come together to network, learn and share their ideas, work and projects with each other, thereby building our knowledge of this evolving aspect of patient care.
Source: Agency for Clinical Innovation
Experience Based Co-design Infographic
Source: Agency for Clinical Innovation