Spinal Cord Injury Network Resources
These resources relate to services which support recovery following spinal cord injury, monitor, manage and stabilise long term health impact, and facilitate individual independence, achievement of personal goals, and return to a fulfilling life in the community.
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My rehab, my journey website
https://aci.health.nsw.gov.au/projects/my-rehab
Format: Webpage
Updated: 15 October 2021
Summary of the guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/167289/Guidelines-for-Wheelchair-Prescription-Summary.pdf
Technical report for the Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/167288/Guidelines-on-Wheelchair-Pescription-Technical-Report_.pdf
Consumer information - Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/167287/Guidelines-on-Wheelchair-Prescription-Consumer-Information.pdf
Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/167286/Guidelines-on-Wheelchair-Prescription.pdf
Model of Care for Prevention and Integrated Management of Pressure Injuries in People with Spinal Cord Injury and Spina Bifida
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/pressure-injuries/scis-pressure-injury-moc
Format: Webpage
Updated: 22 May 2014
Pressure Injuries in people with SCI & SB
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/272196/PI_Clinical_Champions_EOI_form.pdf
Format: PDF File (143.0 KB) Alternate Content:
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Updated: 1 June 2015
Pressure Injury Toolkit
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/pi-toolkit
Format: Webpage
Updated: 10 March 2022
NSW SSCIS Pathway for Management of Pressure Injuries in SCI – May 2016
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0017/313640/SSCIS_PI_ReferralPathway.pdf
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Updated: 16 June 2016
Autonomic Dysreflexia Algorithm
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155143/algorithm.pdf
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Updated: 29 June 2011
Treatment of Autonomic Dysreflexia for Adults and Adolescents with Spinal Cord Injuries (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155149/Autonomic-Dysreflexia-Treatment.pdf
Format: PDF File (1.6 MB) Alternate Content:
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Updated: 16 May 2014
Autonomic Dysreflexia Medical Emergency Card
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf
Format: PDF File (198.5 KB) Alternate Content:
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Updated: 2 June 2017
Video Presentation on Autonomic Dysreflexia by Dr James Middleton
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/autonomic_dysreflexia/video_presentation_on_autonomic_dysreflexia_by_dr_james_middleton
Format: Webpage
Updated: 25 January 2013
Emotional wellbeing toolkit: a clinician’s guide to working with spinal cord injury
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/psychosocial_strategy/emotional-wellbeing-toolkit
Format: Webpage
Updated: 12 April 2021
Guide for Health Professionals on the Psychosocial Care of People with Spinal Cord Injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155233/Guide-Psychosocial-Care.pdf
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Updated: 16 May 2014
Improving Transitions to Community Living for People with Spinal Cord Injury in NSW: Final Report
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/553579/Improving-Transitions-to-Community-Living-for-People-with-SCI-Final-Report.pdf
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Updated: 15 October 2019
Psychosocial Adjustment after Spinal Cord Injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155197/Psychosocial-Adjustment.pdf
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Updated: 16 May 2014
SSCIS Psychosocial Strategy – Case Study 1 – Acute Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/166619/psychosocial_case_study_1.pdf
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Updated: 21 June 2012
SSCIS Psychosocial Strategy – Case Study 2 – Rehabilitation Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/166620/psychosocial_case_study_2.pdf
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Updated: 21 June 2012
SSCIS Psychosocial Strategy – Case Study 3 – Community Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/166621/psychosocial_case_study_3.pdf
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Updated: 21 June 2012
Psychosocial Strategy - Flyer November 2016
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/339055/Psychosocial_Strategy_Flyer_November_2016.pdf
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Updated: 9 November 2016
Referral Directory
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/referral-directory
Format: Webpage
Updated: 10 March 2022
SSCIS Principles for the Inter-Hospital Referral and Transfer Communications Process for Adult Patients with a Spinal Cord Injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/255407/sscis-interhospital-transfer-communication-v040213.pdf
State Spinal Seating Services
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155251/seat.pdf
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Updated: 22 February 2012
Spinal Seating Professional Development Program
The ACI State Spinal Cord Injury Service education website for seating and wheeled mobility has been established to assist health professionals gain knowledge, confidence and understanding in the practice of seating and wheeled mobility prescription. The site's audience is health professional graduates and students working with people who have acquired a spinal cord injury or similar neurological condition.
This education resource has been established as a component of the Spinal Seating Professional Development Program. Other components of the program include developing a broader network of health professionals and rehabilitation engineers who assess and prescribe seating and wheel mobility, improving competency, developing specialist education sessions and standardisation within the network’s specialist seating and wheeled mobility services.
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating
Format: Webpage
Updated: 16 November 2020
About your contoured foam cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155257/usefoam.pdf
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Updated: 22 February 2012
About your Jay cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155263/usejay.pdf
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Updated: 22 February 2012
About your ROHO Enhancer cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155269/useroho2.pdf
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Updated: 22 February 2012
About your ROHO Quadtro Select ® / Contour Select™ Cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155275/useroho3.pdf
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Updated: 22 February 2012
The SOS-HQ - 3. Autonomic Dysreflexia
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155327/sos_hq_autonomic_dysreflexia.pdf
The SOS-HQ - 1. Bladder Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155315/sos_hq_bladder.pdf
The SOS-HQ - 2. Bowel Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0017/155321/sos_hq_bowel.pdf
The SOS-HQ - 5. Cardiovascular
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155339/sos_hq_cardiovascular.pdf
The SOS-HQ - Cover page
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/155310/sos_hq_cover.pdf
The SOS-HQ - Entire Questionnaire
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/155304/sos_hq_full.pdf
The SOS-HQ - 11. General Health
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155375/sos_hq_general_health.pdf
The SOS-HQ - 10. Musculoskeletal Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/155369/sos_hq_musculoskeletal.pdf
The SOS-HQ - 7. Neurological Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155351/sos_hq_neurological.pdf
The SOS-HQ - 9. Pain
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155363/sos_hq_pain.pdf
The SOS-HQ - 6. Respiratory
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155345/sos_hq_respiratory.pdf
The SOS-HQ - 12. Sexual Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155381/sos_hq_sexual_function.pdf
The SOS-HQ - 4. Skin
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155333/sos_hq_skin.pdf
The SOS-HQ - 8. Spasm and Spasticity
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155357/sos_hq_spasm.pdf
Innovative Service Model for Chronic Pain Management After Spinal Cord Injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/256297/Innovative_Service_Model_for_Chronic_Pain_Management_After_Spinal_Cord_Injury.pdf
SCI Pain Course
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/272193/SCIOpen1_Flyer_30_07_14.pdf
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Updated: 1 June 2015
Chronic Pain & Spinal Cord Injury Project Report 3: Development of the SCI Pain Navigator
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/231520/SCIPAIN-Report-3-Dev-Sci-Pain-Navigator.pdf
Chronic Pain & Spinal Cord Injury Project Final Report
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/269515/SCIPAIN_LTCSA_Final_Project_Report.pdf
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Updated: 7 May 2015
Questionnaire 1: Bladder, Bowel and Autonomic Dysreflexia
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155393/sos_hq_questionnaire_1.pdf
Questionnaire 2: Skin, Cardiovascular and Respiratory Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155398/sos_hq_questionnaire_2.pdf
Questionnaire 3: Neurological Function, Spasticity and Pain
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/155403/sos_hq_questionnaire_3.pdf
Questionnaire 4: Musculoskeletal Function, General Health and Sexual Function
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155408/sos_hq_questionnaire_4.pdf
CIAP - Specialties - NSW Government
http://www.ciap.health.nsw.gov.au/home.html
Format: Webpage
Updated: 25 November 2020
D-Ability
http://www.d-ability.org/
Format: Webpage
Updated: 25 November 2020
EnableNSW
EnableNSW provides equipment, and in some cases attendant care, to assist eligible residents of NSW with a permanent or long-term disability by providing assistive technology in the areas of:
- mobility
- self care
- communication, and
- respiratory support.
EnableNSW is part of Health Support Services and is responsible for the administration of the NSW Health disability support programs including the:
- Aids and Equipment Program (formerly known as PADP)
- Specialised Equipment Essential for Discharge (SEED)
- Young People in Residential Aged Care (YPIRAC)
http://www.enable.health.nsw.gov.au
Format: Webpage
Updated: 31 March 2022
Health Insite
http://www.healthinsite.gov.au/topics/Spinal_Cord_Diseases
Format: Webpage
Updated: 25 November 2020
iCare
https://www.icare.nsw.gov.au
Format: Webpage
Updated: 25 November 2020
International Spinal Cord Society
http://www.iscos.org.uk/
Format: Webpage
Updated: 25 November 2020
MedlinePlus USA
http://www.nlm.nih.gov/medlineplus/spinalcordinjuries.html
Format: Webpage
Updated: 25 November 2020
Northcott Paediatric Spinal Outreach Service
http://www.northcott.com.au/index.php
Format: Webpage
Updated: 25 November 2020
Paraquad NSW (NGO)
http://www.paraquad.org.au/
Format: Webpage
Updated: 25 November 2020
Physiotherapy Exercises for people with a Spinal Cord Injury
http://www.physiotherapyexercises.com/
Format: Webpage
Updated: 25 November 2020
Queensland Spinal Injuries Unit
http://www.health.qld.gov.au/qscis/
Format: Webpage
Updated: 25 November 2020
Spinal Cord Injury Education and Resources Directory
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/460153/SCI-education-directory.pdf
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Updated: 16 January 2019
Spinal Cord Injuries Australia (NGO)
http://scia.org.au/
Format: Webpage
Updated: 25 November 2020
Spinal Cord Injury Rehabilitation Evidence (SCIRE)
http://icord.org/documents/scire-spinal-cord-injury-rehabilitation-evidence/
Format: Webpage
Updated: 25 November 2020
The Independent Living Centre (ILC) NSW (NGO)
https://ilcaustralia.org.au/contact_us/new_south_wales
Format: Webpage
Updated: 12 April 2021
Information on COVID-19 for people with spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/582824/ACI-Information-on-COVID-19-for-people-with-spinal-cord-injury.pdf
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Updated: 17 September 2021
Inspiratory muscle training in people with spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/582825/ACI-SCI-CoP_IMT-Consumer-Guidance.pdf
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Updated: 17 December 2020
Nutrition for Adults with Spinal Cord Injuries
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155185/ACI_0239-Nutrition-for-Adults-with-SCI_F.pdf
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Updated: 18 September 2019
Dad has a spinal cord injury, and what happened next
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155287/dad_had_a_sci_Oct2406.pdf
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Updated: 4 April 2017
Consumer information - Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/167287/Guidelines-on-Wheelchair-Prescription-Consumer-Information.pdf
How to stay healthy and well with a spinal cord injury - A tool for consumers from consumers
This tool has been written through the eyes of a person living with a spinal cord injury, so you can learn what to do to stay well and know what actions to take when health issues arise. The first step is usually to self-manage, but if this approach doesn’t work, an appropriate healthcare professional can help.
https://www.icare.nsw.gov.au/-/media/icare/unique-media/global-header/news-and-stories/news/health-maintenance-toolkit-a-guide-for-people-with-spinal-cord-injury/spinal-cord-injury-health-maintenance-toolkit.pdf
Format: PDF File
Updated: 25 March 2021
Autonomic Dysreflexia Medical Emergency Card
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf
Format: PDF File (198.5 KB) Alternate Content:
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Updated: 2 June 2017
Spinal Cord Injury Health Management Plan
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/173637/sci-health-management-plan.pdf
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Updated: 8 October 2012
Spinal Cord Injury Research for Consumers
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155293/sci_research.pdf
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Updated: 29 June 2011
SCI Pain Course
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/272193/SCIOpen1_Flyer_30_07_14.pdf
Format: PDF File (379.9 KB) Alternate Content:
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Updated: 1 June 2015
CD ROM for Spinal Cord Injury Education
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0016/155221/spinal-education-cd.pdf
Format: PDF File (67.7 KB) Alternate Content:
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Updated: 8 October 2012
Talking to Children about SCI
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/194399/Talking_to_children_about_SCI_-guide_for_families_A4_book_LR.pdf
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Updated: 4 April 2017
What to do when you are hospitalised
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/155298/What-to-do-when-you-are-hospitalised.pdf
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Updated: 15 April 2020
Ageing with Spinal Cord Injury (2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/224679/ACI-Ageing-with-SCI-FINAL.pdf
Fertility following spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/600855/ACI-SCI-Fertility-following-spinal-injury.pdf
Format: PDF File (383.2 KB) Alternate Content:
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Updated: 28 August 2020
Health Maintenance for Adults with Spinal Cord injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155167/Health-Maintenance.pdf
Management of the Neurogenic Bladder for Adults with Spinal Cord Injuries (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155179/Management-Neurogenic-Bladder.pdf
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Updated: 16 May 2014
Management of the Neurogenic Bowel for Adults with Spinal Cord Injuries (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155215/Management-Neurogenic-Bowel.pdf
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Updated: 16 May 2014
Occupational Therapy Interventions for Adults with Spinal Cord Injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155191/occupational-therapy-interventions.pdf
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Updated: 7 January 2015
Sexuality following spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/349051/Spinal-sexuality-guideline-160317.pdf
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Updated: 16 March 2017
Exit Block Project
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/284409/Exit-block-project-A-Butcher.pdf
Format: PDF File (351.9 KB) Alternate Content:
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Updated: 25 September 2015
Health Assessment and Risk Management in Rural Persons with SCI
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/284410/Health-Management-Risk-Management-in-Rural-persons-with-SCI-M-McCormick.pdf
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Updated: 25 September 2015
In-Voc – The Vocational Contribution to Wellness
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/284411/In-Voc-The-Vocational-Contribution-to-Wellness-Spinal-S-Rowe.pdf
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Updated: 25 September 2015
Network of SCI Pressure Injury Clinical Champions
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/284413/Network-of-SCI-Pressure-Injury-Clinical-Champions.pdf
Format: PDF File (158.1 KB) Alternate Content:
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Updated: 25 September 2015
The SCI Pressure Injury Toolkit
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/284417/SCI-Pressure-Injury-Toolkit_L-Katte.pdf
Format: PDF File (1.0 MB) Alternate Content:
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Updated: 25 September 2015
Psychosocial Strategy Newsletter September 2018
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/457307/Psychosocial-Strategy-Newsletter-2018-September.pdf
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Updated: 5 December 2018
Evidence and utilisation of spinal cord injury services in NSW
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/evidence-and-utilisation-of-spinal-cord-injury-services-in-nsw
Format: Webpage
Updated: 27 August 2020
Spinal Cord Injury Model of Care
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/spinal-cord-injury-model-of-care
Format: Webpage
Updated: 20 April 2017
National Disability Insurance Scheme (NDIS) and COVID-19
https://aci.health.nsw.gov.au/resources/rehabilitation/national-disability-insurance-scheme-ndis/ndis-and-covid-19
Format: Webpage
Updated: 15 March 2022
Spinal Cord Injury Emotional Wellbeing Toolkit elearning Course
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/learning-resources/emotional-wellbeing-elearning
Format: Webpage
Updated: 26 May 2021
The Chronic Pain and Brain Injury website
https://aci.health.nsw.gov.au/chronic-pain/brain-injury
Format: Webpage
Updated: 28 April 2021