Spinal Cord Injury Resources

These resources relate to services which support recovery following spinal cord injury, monitor, manage and stabilise long term health impact, and facilitate individual independence, achievement of personal goals, and return to a fulfilling life in the community.

Summary of the guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/167289/Guidelines-for-Wheelchair-Prescription-Summary.pdf

Format: PDF File (448.8 KB) Alternate Content: Plain Text

Subcategory: Guidelines for the prescription of a seated wheelchair or mobility scooter Resource Type: Clinical Guidelines

Added: 3 July 2012 Updated: 3 July 2012

Technical report for the Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/167288/Guidelines-on-Wheelchair-Pescription-Technical-Report_.pdf

Format: PDF File (1.6 MB) Alternate Content: Plain Text

Subcategory: Guidelines for the prescription of a seated wheelchair or mobility scooter Resource Type: Reports

Added: 3 July 2012 Updated: 3 July 2012

Consumer information - Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/167287/Guidelines-on-Wheelchair-Prescription-Consumer-Information.pdf

Format: PDF File (339.9 KB) Alternate Content: Plain Text

Subcategory: Guidelines for the prescription of a seated wheelchair or mobility scooter Resource Type: Consumer Information

Added: 3 July 2012 Updated: 3 July 2012

Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/167286/Guidelines-on-Wheelchair-Prescription.pdf

Format: PDF File (2.8 MB) Alternate Content: Plain Text

Subcategory: Guidelines for the prescription of a seated wheelchair or mobility scooter Resource Type: Clinical Guidelines

Added: 3 July 2012 Updated: 3 July 2012

Model of Care for Prevention and Integrated Management of Pressure Injuries in People with Spinal Cord Injury and Spina Bifida

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/pressure-injuries/scis-pressure-injury-moc

Format: Webpage

Subcategory: Pressure Injuries in People with Spinal Cord Injury and Spina Bifida Resource Type: Models of Care

Added: 25 March 2014 Updated: 22 May 2014

Pressure Injuries in people with SCI & SB

Expression of Interest form - Pressure Injury Clinical Champions Group

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/272196/PI_Clinical_Champions_EOI_form.pdf

Format: PDF File (143.0 KB) Alternate Content: --

Subcategory: Pressure Injuries in People with Spinal Cord Injury and Spina Bifida Resource Type: Forms

Added: 1 June 2015 Updated: 1 June 2015

Pressure Injury Toolkit

https://aci.health.nsw.gov.au/networks/spinal-cord-injury/pi-toolkit

Format: Webpage

Subcategory: Pressure Injuries in People with Spinal Cord Injury and Spina Bifida Resource Type: Other

Added: 18 August 2016 Updated: 30 May 2019

NSW SSCIS Pathway for Management of Pressure Injuries in SCI – May 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0017/313640/SSCIS_PI_ReferralPathway.pdf

Format: PDF File (255.5 KB) Alternate Content: --

Subcategory: Pressure Injuries in People with Spinal Cord Injury and Spina Bifida Resource Type: Clinical Guidelines

Added: 16 June 2016 Updated: 16 June 2016

Autonomic Dysreflexia Algorithm

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155143/algorithm.pdf

Format: PDF File (50.9 KB) Alternate Content: --

Subcategory: Autonomic Dysreflexia Resource Type: Clinical Guidelines

Added: 29 June 2011 Updated: 13 February 2012

Treatment of Autonomic Dysreflexia for Adults and Adolescents with Spinal Cord Injuries (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155149/Autonomic-Dysreflexia-Treatment.pdf

Format: PDF File (1.6 MB) Alternate Content: --

Subcategory: Autonomic Dysreflexia Resource Type: Factsheets

Added: 29 June 2011 Updated: 13 February 2014

Autonomic Dysreflexia Medical Emergency Card

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf

Format: PDF File (198.5 KB) Alternate Content: --

Subcategory: Autonomic Dysreflexia Resource Type: Consumer Information

Added: 22 February 2012 Updated: 22 February 2012

Autonomic Dysreflexia Post Education Session Evaluation Form

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155161/post_ad_education_session.pdf

Format: PDF File (108.8 KB) Alternate Content: --

Subcategory: Autonomic Dysreflexia Resource Type: Forms

Added: 29 June 2011 Updated: 13 February 2012

Autonomic Dysreflexia Pre Education Session Survey

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155155/pre_ad_education_session_.pdf

Format: PDF File (111.7 KB) Alternate Content: --

Subcategory: Autonomic Dysreflexia Resource Type: Forms

Added: 29 June 2011 Updated: 13 February 2012

Video Presentation on Autonomic Dysreflexia by Dr James Middleton

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/autonomic_dysreflexia/video_presentation_on_autonomic_dysreflexia_by_dr_james_middleton

Format: Webpage

Subcategory: Autonomic Dysreflexia Resource Type: Presentations

Added: 25 January 2013 Updated: 25 January 2013

Directory of Information and Support (not available, currently under review)

https://aci.health.nsw.gov.au/resources/spinal-cord-injury

Format: Webpage

Subcategory: Psychosocial Strategy Resources Resource Type: Other

Added: 9 November 2016 Updated: 9 November 2016

Emotional wellbeing toolkit: a clinician’s guide to working with spinal cord injury

This toolkit aims to support clinicians in understanding and managing psychosocial issues associated with acute and long-term spinal cord injury.

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/psychosocial_strategy/emotional-wellbeing-toolkit

Format: Webpage

Subcategory: Psychosocial Strategy Resources Resource Type: Toolkits

Added: 5 September 2016 Updated: 5 September 2016

Guide for Health Professionals on the Psychosocial Care of People with Spinal Cord Injury (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155233/Guide-Psychosocial-Care.pdf

Format: PDF File (2.5 MB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Clinical Guidelines

Added: 10 February 2014 Updated: 10 May 2014

Psychosocial Adjustment after Spinal Cord Injury (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155197/Psychosocial-Adjustment.pdf

Format: PDF File (2.1 MB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Clinical Guidelines

Added: 10 February 2014 Updated: 10 May 2014

SSCIS Psychosocial Strategy – Case Study 1 – Acute Setting

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/166619/psychosocial_case_study_1.pdf

Format: PDF File (69.5 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Clinician Summaries

Added: 21 June 2012 Updated: 21 June 2012

SSCIS Psychosocial Strategy – Case Study 2 – Rehabilitation Setting

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/166620/psychosocial_case_study_2.pdf

Format: PDF File (65.1 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Clinician Summaries

Added: 21 June 2012 Updated: 21 June 2012

SSCIS Psychosocial Strategy – Case Study 3 – Community Setting

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/166621/psychosocial_case_study_3.pdf

Format: PDF File (68.6 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Clinician Summaries

Added: 21 June 2012 Updated: 21 June 2012

Psychosocial Strategy - Flyer November 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/339055/Psychosocial_Strategy_Flyer_November_2016.pdf

Format: PDF File (321.9 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Resources Resource Type: Other

Added: 9 November 2016 Updated: 9 November 2016

Referral Directory

https://aci.health.nsw.gov.au/networks/spinal-cord-injury/referral-directory

Format: Webpage

Subcategory: Referral Directory Resource Type: Other

Added: 29 February 2012 Updated: 7 November 2014

SSCIS Principles for the Inter-Hospital Referral and Transfer Communications Process for Adult Patients with a Spinal Cord Injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/255407/sscis-interhospital-transfer-communication-v040213.pdf

Format: PDF File (771.1 KB) Alternate Content: Plain Text

Subcategory: Referral Directory Resource Type: Key Principles

Added: 29 January 2015 Updated: 29 January 2015

State Spinal Seating Services

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155251/seat.pdf

Format: PDF File (260.0 KB) Alternate Content: --

Subcategory: Spinal Seating Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

Spinal Seating Professional Development Program

The ACI State Spinal Cord Injury Service education website for seating and wheeled mobility has been established to assist health professionals gain knowledge, confidence and understanding in the practice of seating and wheeled mobility prescription. The site's audience is health professional graduates and students working with people who have acquired a spinal cord injury or similar neurological condition.

This education resource has been established as a component of the Spinal Seating Professional Development Program. Other components of the program include developing a broader network of health professionals and rehabilitation engineers who assess and prescribe seating and wheel mobility, improving competency, developing specialist education sessions and standardisation within the network’s specialist seating and wheeled mobility services.

https://aci.health.nsw.gov.au/networks/to-be-deleted/spinal-seating

Format: Webpage

Subcategory: Spinal Seating Resource Type: Web Resources

Added: 3 July 2014 Updated: 25 July 2014

About your contoured foam cushion

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155257/usefoam.pdf

Format: PDF File (121.4 KB) Alternate Content: --

Subcategory: Spinal Seating Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

About your Jay cushion

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155263/usejay.pdf

Format: PDF File (236.7 KB) Alternate Content: --

Subcategory: Spinal Seating Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

About your ROHO Enhancer cushion

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155269/useroho2.pdf

Format: PDF File (103.5 KB) Alternate Content: --

Subcategory: Spinal Seating Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

About your ROHO Quadtro Select ® / Contour Select™ Cushion

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155275/useroho3.pdf

Format: PDF File (149.1 KB) Alternate Content: --

Subcategory: Spinal Seating Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 3. Autonomic Dysreflexia

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155327/sos_hq_autonomic_dysreflexia.pdf

Format: PDF File (21.9 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 1. Bladder Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155315/sos_hq_bladder.pdf

Format: PDF File (34.2 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 2. Bowel Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0017/155321/sos_hq_bowel.pdf

Format: PDF File (22.9 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 5. Cardiovascular

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155339/sos_hq_cardiovascular.pdf

Format: PDF File (27.8 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - Cover page

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/155310/sos_hq_cover.pdf

Format: PDF File (22.2 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - Entire Questionnaire

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/155304/sos_hq_full.pdf

Format: PDF File (122.5 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 11. General Health

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155375/sos_hq_general_health.pdf

Format: PDF File (18.6 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 10. Musculoskeletal Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/155369/sos_hq_musculoskeletal.pdf

Format: PDF File (18.9 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 7. Neurological Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155351/sos_hq_neurological.pdf

Format: PDF File (18.1 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 9. Pain

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155363/sos_hq_pain.pdf

Format: PDF File (41.5 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 6. Respiratory

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155345/sos_hq_respiratory.pdf

Format: PDF File (28.3 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 12. Sexual Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155381/sos_hq_sexual_function.pdf

Format: PDF File (18.5 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 4. Skin

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/155333/sos_hq_skin.pdf

Format: PDF File (31.8 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

The SOS-HQ - 8. Spasm and Spasticity

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155357/sos_hq_spasm.pdf

Format: PDF File (18.4 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Spinal Outreach Service Health Questionnaire Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

Innovative Service Model for Chronic Pain Management After Spinal Cord Injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/256297/Innovative_Service_Model_for_Chronic_Pain_Management_After_Spinal_Cord_Injury.pdf

Format: PDF File (2.1 MB) Alternate Content: Plain Text

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Posters

Added: 13 February 2015 Updated: 13 February 2015

Chronic Pain & Spinal Cord Injury Project Report 4: Development of The SCI Pain Online Toolkit

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/255950/SCI-PAIN-Report-4-Development-of-the-SCI-Pain-Online-Toolkit.pdf

Format: PDF File (3.4 MB) Alternate Content: --

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Reports

Added: 5 February 2015 Updated: 5 February 2015

Development of an online toolkit for the Spinal Cord Injury and Chronic Pain project

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/269516/SCI_Pain_Poster_ISCOS_2015.pdf

Format: PDF File (2.3 MB) Alternate Content: --

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Posters

Added: 7 May 2015 Updated: 7 May 2015

SCI Pain Course

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/272193/SCIOpen1_Flyer_30_07_14.pdf

Format: PDF File (379.9 KB) Alternate Content: --

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Consumer Information

Added: 1 June 2015 Updated: 1 June 2015

Chronic Pain & Spinal Cord Injury Project Report 3: Development of the SCI Pain Navigator

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/231520/SCIPAIN-Report-3-Dev-Sci-Pain-Navigator.pdf

Format: PDF File (1.7 MB) Alternate Content: Plain Text

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Reports

Added: 10 June 2014 Updated: 10 June 2014

Chronic Pain & Spinal Cord Injury Project Final Report

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/269515/SCIPAIN_LTCSA_Final_Project_Report.pdf

Format: PDF File (284.7 KB) Alternate Content: --

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Reports

Added: 7 May 2015 Updated: 7 May 2015

Chronic Pain & Spinal Cord Injury Project Report 1: Consumer Needs Analysis

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/204624/SCIPAIN_REPORT_1_Consumer_Needs_Analysis.pdf

Format: PDF File (3.1 MB) Alternate Content: Plain Text

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Reports

Added: 9 December 2013 Updated: 9 December 2013

Chronic Pain & Spinal Cord Injury Project Report 2: Clinician Needs Analysis

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/204625/SCIPAIN_REPORT_2_Clinician_Needs_Analysis.pdf

Format: PDF File (1.3 MB) Alternate Content: Plain Text

Subcategory: Chronic Pain and Spinal Cord Injury Resource Type: Reports

Added: 9 December 2013 Updated: 9 December 2013

Questionnaire 1: Bladder, Bowel and Autonomic Dysreflexia

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/155393/sos_hq_questionnaire_1.pdf

Format: PDF File (71.5 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Suggested Format of Completing the SOS-HQ Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

Questionnaire 2: Skin, Cardiovascular and Respiratory Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155398/sos_hq_questionnaire_2.pdf

Format: PDF File (68.9 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Suggested Format of Completing the SOS-HQ Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

Questionnaire 3: Neurological Function, Spasticity and Pain

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/155403/sos_hq_questionnaire_3.pdf

Format: PDF File (69.3 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Suggested Format of Completing the SOS-HQ Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

Questionnaire 4: Musculoskeletal Function, General Health and Sexual Function

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/155408/sos_hq_questionnaire_4.pdf

Format: PDF File (42.9 KB) Alternate Content: Plain Text

Subcategory: SOS-HQ - Suggested Format of Completing the SOS-HQ Resource Type: Toolkits

Added: 29 June 2011 Updated: 13 February 2012

brainandspinalcord.org

American website containing resources and information for people with brain and spinal cord injuries.

http://www.brainandspinalcord.org/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

CIAP - Specialties - NSW Government

The Clinical Information Access Program (CIAP) provides access to clinical information and resources to support evidence-based practice at the point of care.

http://www.ciap.health.nsw.gov.au/home.html

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

D-Ability

The D-Ability site was developed by the Royal Rehabilitation Centre Sydney and focuses on maximising abilities through recreation travel leisure sport and the arts for people with spinal cord injuries. Developed by Mr Kel Smith and consumers with spinal cord injuries the site is a treasure trove of information for consumers and health professionals.

http://www.d-ability.org/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

EnableNSW

EnableNSW provides equipment, and in some cases attendant care, to assist eligible residents of NSW with a permanent or long-term disability by providing assistive technology in the areas of:

mobility
self care
communication, and
respiratory support.

EnableNSW is part of Health Support Services and is responsible for the administration of the NSW Health disability support programs including the:

Aids and Equipment Program (formerly known as PADP)
Specialised Equipment Essential for Discharge (SEED)
Young People in Residential Aged Care (YPIRAC)
Prosthetic Limb Service (formerly known as ALS)
Home Respiratory Program (HRP)

http://www.enable.health.nsw.gov.au

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

EnableNSW and LTCSA 'Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury'

The Guidelines is a joint project between LTCSA and EnableNSW developed by a working party of expert clinicians and consumers. The Guidelines are intended to inform and guide occupational therapists and physiotherapists on actions and decisions but do not replace the need for clinical supervision or clinical judgement. The Guidelines provide recommendations that range from topics on the goals and evaluation assessment and review capacity and performance of the client upper limb capacity and risk of injury wheelchair features through to propulsion training transport and maintenance. Resources have been developed to support the use of the Guidelines and include checklists on key areas such as shoulder injury prevention long-term needs training transport and maintenance. There is a summary of the Guidelines for quick reference. A consumer guide assists potential wheelchair users to become involved in the prescription of their wheelchair. A technical report provides detail information on the method and the research used to develop the guidelines.

http://www.enable.health.nsw.gov.au/home/publications

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Health Insite

Health Insite - A Healthdirect Australia health information service. Includes publications on spinal cord injuries.

http://www.healthinsite.gov.au/topics/Spinal_Cord_Diseases

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

iCare

icare (Insurance & Care NSW) is a Public Financial Corporation governed by an independent Board of Directors that delivers insurance and care services to the people of New South Wales. Whether a person is severely injured in the workplace or on our roads, icare supports their long-term care needs to improve quality of life outcomes, including helping people return to work.

https://www.icare.nsw.gov.au

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

International Spinal Cord Society

(International Scientific Association)

http://www.iscos.org.uk/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

MedlinePlus USA

A link to the Medline Plus spinal cord injury information a service of the U.S. National Library of Medicine and the National Institutes of Health. This site contains a large selection of health related issues introductory overviews frequently asked questions statistics and extensive links to other USA spinal cord injury websites.

http://www.nlm.nih.gov/medlineplus/spinalcordinjuries.html

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Motor Accidents Authority - NSW Government

A key partner of the SSCIS which has funded many projects including guideline development. Includes links to injury prevention strategies and a broad range of initiatives associated with spinal cord injuries and other traumatic conditions.

http://www.maa.nsw.gov.au/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Northcott Paediatric Spinal Outreach Service

The Northcott Paediatric Spinal Outreach Service is jointly funded by Northcott Disability Services and NSW Health. The team services children and adolescents throughout NSW and the ACT who have had a spinal cord injury. The aim of the service is to maximise age-appropriate rehabilitation and to facilitate reintegration into home school and the community.

http://www.northcott.com.au/index.php

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Paralysed Veterans Association

This USA site has an extensive range of information for health professionals and consumers.

http://www.pva.org/site/PageServer?pagename=memb_resources_injury

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Paraquad NSW (NGO)

ParaQuad NSW website contains all the latest information news events about living in the community with a spinal cord injury in addition to health information targeting people with spinal cord injuries and their carers. The site has a strong community and advocacy focus and is ideal for health professionals working in the non-inpatient environment and for consumers.

http://www.paraquad.org.au/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

PCYC 'Burn Rubber Burn'

Burn Rubber Burn is an exercise program developed for individuals with a spinal cord injury. It is a circuit based exercise program incorporating resistance and cardiovascular training focusing on health and wellbeing. This site includes details about program locations cost and contact details.

http://www.pcycnsw.org/prime_sparts_burn_rubber

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Physiotherapy Exercises for people with a Spinal Cord Injury

This website contains physiotherapy exercises appropriate for people with neurological conditions and primarily consists of exercises aimed at improving strength flexibility function and fitness.

http://www.physiotherapyexercises.com/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Queensland Spinal Injuries Unit

Includes information and resources for health professionals about spinal cord injuries. The Handbook of Spinal Cord Injuries is particularly useful.

http://www.health.qld.gov.au/qscis/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

SANE Australia

Information on staying mentally healthy for individuals with spinal cord injury.

http://www.sane.org/sane-media-old/stigma-and-mental-illness/848-staying-mentally-healthy-when-you-have-a-spinal-cord-injury

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Spinal Cord Injury Education and Resources Directory

This directory is intended as a starting point for information on the care and management of people with a spinal cord injury.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/460153/SCI-education-directory.pdf

Format: PDF File (703.9 KB) Alternate Content: --

Subcategory: Organisations and External Links Resource Type: Reports

Added: 16 January 2019 Updated: 16 January 2019

Spinal Cord Injuries Australia (NGO)

This site contains a broad and diverse array of information and news about spinal issues.

http://scia.org.au/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Spinal Cord Injury Australia 2007-08

Spinal cord injury Australia 2007-08 Australian Institute of Health and Welfare (AIHW) Canberra.

http://www.aihw.gov.au/publication-detail/?id=6442468335

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Spinal Cord Injury Information Network

This USA site has an extensive range of information for health professionals and consumers.

http://www.spinalcord.uab.edu/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Spinal Cord Injury Rehabilitation Evidence (SCIRE)

This manual represents the first comprehensive synthesis of the published evidence on rehabilitation strategies and community-based programs designed to improve the functional outcomes and quality of life for people living with a SCI. It is primarily intended as a guide for professionals in the areas of SCI health care and community care. It should also prove useful to SCI researchers public policy makers and people with SCI and their families.

http://icord.org/documents/scire-spinal-cord-injury-rehabilitation-evidence/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

The Independent Living Centre (ILC) NSW (NGO)

The ILC is a specialist not for profit organisation with expertise in equipment aides and home modifications. The Centre located at No. 1 Fennell Street Parramatta displays an extensive range of equipment and can assist with trials and in-depth advice. The ILC also offers a training program for allied health professionals.

http://www.ilcnsw.asn.au/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

The Model Spinal Cord Injury System Dissemination Centre

The MSCISDC has two goals: 1. Establish maintain and disseminate a bibliography of the academic publications of the MSCIS Centers and the Collaborative Research Projects in SCI. 2. Establish a system to collect maintain and disseminate consumer and professional education materials produced by the MSCIS Centers and Collaborative Research projects in SCI including a system for uniform reporting and collection of presentations by the MSCIS Centers to all audiences.

http://www.mscisdisseminationcenter.org/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

The Spinal Cord Injury Network

Established in 2008 the Spinal Cord Injury Network (SCIN) has identified a number of ways to speed the translation of innovative research discoveries into practical benefits for people with spinal cord injury.

http://www.spinalnetwork.org.au/

Format: Webpage

Subcategory: Organisations and External Links Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Nutrition for Adults with Spinal Cord Injuries

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155185/ACI_0239-Nutrition-for-Adults-with-SCI_F.pdf

Format: PDF File (3.3 MB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

Report On Consumer Focus Group Conducted For People With Spinal Cord Injuries Living In The Community

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155281/consumer_focus_group_report_sept09.pdf

Format: PDF File (465.8 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

Dad has a spinal cord injury, and what happened next

‘Dad has a spinal cord injury, and what happened next’, is Melissa’s story of her father’s spinal cord injury. It outlines milestones on the journey from his injury to his return home. Readers with spinal cord injury are encouraged to tell their own stories, to enhance communication with their children.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155287/dad_had_a_sci_Oct2406.pdf

Format: PDF File (1.6 MB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

Consumer information - Guidelines for the prescription of a seated wheelchair or mobility scooter for people with a traumatic brain injury or spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/167287/Guidelines-on-Wheelchair-Prescription-Consumer-Information.pdf

Format: PDF File (339.9 KB) Alternate Content: Plain Text

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 3 July 2012 Updated: 3 July 2012

Autonomic Dysreflexia Medical Emergency Card

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf

Format: PDF File (198.5 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 22 February 2012 Updated: 22 February 2012

Spinal Cord Injury Health Management Plan

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/173637/sci-health-management-plan.pdf

Format: PDF File (222.3 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 8 October 2012 Updated: 8 October 2012

Spinal Cord Injury Research for Consumers

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155293/sci_research.pdf

Format: PDF File (4.1 MB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

SCI Pain Course

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/272193/SCIOpen1_Flyer_30_07_14.pdf

Format: PDF File (379.9 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 1 June 2015 Updated: 1 June 2015

CD ROM for Spinal Cord Injury Education

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0016/155221/spinal-education-cd.pdf

Format: PDF File (67.7 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

What to do when you are hospitalised

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/155298/spinal_hospitalisation.pdf

Format: PDF File (38.2 KB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 29 June 2011 Updated: 13 February 2012

Talking to Children about SCI

This unique resource grew from the identified need to provide parents and families who are experiencing a spinal cord injury in a relative with developmentally appropriate guidance and very practical advice about effective ways to support and communicate with child relatives and remain connected to their lives throughout the patient journey after spinal cord injury.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/194399/Talking_to_children_about_SCI_-guide_for_families_A4_book_LR.pdf

Format: PDF File (5.8 MB) Alternate Content: --

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Consumer Information

Added: 14 August 2013 Updated: 14 August 2013

Video Presentation for consumers on Autonomic Dysreflexia by Dr James Middleton

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/consumer_spinal_cord_injury_resources/video-presentation-on-autonomic-dysreflexia

Format: Webpage

Subcategory: Consumer Spinal Cord Injury Resources Resource Type: Presentations

Added: 13 February 2013 Updated: 26 July 2016

Ageing with Spinal Cord Injury (2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/224679/ACI-Ageing-with-SCI-FINAL.pdf

Format: PDF File (1.8 MB) Alternate Content: Plain Text

Subcategory: Factsheets Resource Type: Factsheets

Added: 5 June 2014 Updated: 5 June 2014

Health Nutrition Fact Sheet, Healthy Eating for Adults with Spinal Cord Injury (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/224677/ACI_Eat_for_Health_Nutrition.pdf

Format: PDF File (3.1 MB) Alternate Content: Plain Text

Subcategory: Factsheets Resource Type: Factsheets

Added: 5 June 2014 Updated: 5 June 2014

Health Maintenance for Adults with Spinal Cord injury (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155167/Health-Maintenance.pdf

Format: PDF File (1.4 MB) Alternate Content: Plain Text

Subcategory: Factsheets Resource Type: Factsheets

Added: 10 February 2014 Updated: 10 May 2014

Management of the Neurogenic Bladder for Adults with Spinal Cord Injuries (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155179/Management-Neurogenic-Bladder.pdf

Format: PDF File (1.4 MB) Alternate Content: --

Subcategory: Factsheets Resource Type: Factsheets

Added: 29 June 2011 Updated: 22 February 2012

Management of the Neurogenic Bowel for Adults with Spinal Cord Injuries (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155215/Management-Neurogenic-Bowel.pdf

Format: PDF File (1.6 MB) Alternate Content: --

Subcategory: Factsheets Resource Type: Factsheets

Added: 29 June 2011 Updated: 13 February 2012

Occupational Therapy Interventions for Adults with Spinal Cord Injury (updated 2014)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155191/occupational-therapy-interventions.pdf

Format: PDF File (517.8 KB) Alternate Content: --

Subcategory: Factsheets Resource Type: Factsheets

Added: 10 February 2014 Updated: 10 May 2014

Sexuality following spinal cord injury

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/349051/Spinal-sexuality-guideline-160317.pdf

Format: PDF File (405.7 KB) Alternate Content: --

Subcategory: Factsheets Resource Type: Factsheets

Added: 22 February 2017 Updated: 22 February 2017

ACI – Who we are and what we do

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/284408/ACI-Who-we-are-what-we-do-C-Shipway.pdf

Format: PDF File (302.0 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Exit Block Project

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/284409/Exit-block-project-A-Butcher.pdf

Format: PDF File (351.9 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Health Assessment and Risk Management in Rural Persons with SCI

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/284410/Health-Management-Risk-Management-in-Rural-persons-with-SCI-M-McCormick.pdf

Format: PDF File (636.7 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

In-Voc – The Vocational Contribution to Wellness

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/284411/In-Voc-The-Vocational-Contribution-to-Wellness-Spinal-S-Rowe.pdf

Format: PDF File (492.6 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

My Plan (LTCSA)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/284412/My-Plan-S-Lulham.pdf

Format: PDF File (361.1 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Network of SCI Pressure Injury Clinical Champions

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/284413/Network-of-SCI-Pressure-Injury-Clinical-Champions.pdf

Format: PDF File (158.1 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

NSW Ministry of Health updates

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/284414/NSW-Ministry-of-Health-updates_J-Dunne-L-Farrell.pdf

Format: PDF File (533.0 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Introducing Primary Health Networks (PHN)

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/284415/PHN-N-Cook.pdf

Format: PDF File (115.1 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

SCI Alliance

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/284416/SCI-Alliance-P-Perry.pdf

Format: PDF File (509.0 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

The SCI Pressure Injury Toolkit

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/284417/SCI-Pressure-Injury-Toolkit_L-Katte.pdf

Format: PDF File (1.0 MB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Program – SSCIS Forum 2015

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/284418/SSCIS-Forum-2015-Program.pdf

Format: PDF File (230.6 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Working together to meet future challenges

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/284419/Working-together-to-meet-future-challenges-J-Middleton_L_Kelly.pdf

Format: PDF File (600.9 KB) Alternate Content: --

Subcategory: State Spinal Cord Injury Service Forum 2015 Resource Type: Presentations

Added: 25 September 2015 Updated: 25 September 2015

Psychosocial Strategy Newsletter Oct 2017

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/394748/Psychosocial-Strategy-Newsletter-2017-October.pdf

Format: PDF File (1.0 MB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Other

Added: 24 November 2017 Updated: 24 November 2017

Psychosocial Strategy Newsletter April 2017

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/359002/Psychosocial-Strategy-Newsletter-2017.pdf

Format: PDF File (511.0 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Other

Added: 5 May 2017 Updated: 5 May 2017

Psychosocial Strategy Newsletter September 2018

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/457307/Psychosocial-Strategy-Newsletter-2018-September.pdf

Format: PDF File (703.6 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Other

Added: 5 December 2018 Updated: 5 December 2018

Psychosocial Strategy Newsletter April 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/323187/Psychosocial_Strategy_Newsletter_April_2016.pdf

Format: PDF File (423.6 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Newsletters

Added: 5 August 2016 Updated: 5 August 2016

Psychosocial Strategy Newsletter Oct 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/335574/Psychosocial_Strategy_Newsletter_Oct_2016.pdf

Format: PDF File (324.4 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Newsletters

Added: 13 October 2016 Updated: 13 October 2016

Psychosocial Strategy Newsletter Sept 2015

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/285778/Psychosocial_Strategy_Newsletter_Sept_2015.pdf

Format: PDF File (173.9 KB) Alternate Content: --

Subcategory: Psychosocial Strategy Newsletters Resource Type: Newsletters

Added: 9 October 2015 Updated: 9 October 2015

Spinal Cord Injury Model of Care

The SSCIS has commenced the development of a new model of care for the management and support of children and adults with a spinal cord injury in NSW.

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/spinal-cord-injury-model-of-care

Format: Webpage

Subcategory: Model of Care Resource Type: Models of Care

Added: 20 April 2017 Updated: 20 April 2017

Workshop June 2017

A workshop was held on Friday 16 June 2017 with 80 participants including people with spinal cord injury, and representatives from all clinical disciplines and senior management involved in health services for people with SCI.

https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/workshop-june-2017

Format: Webpage

Subcategory: Model of Care Resource Type: Presentations

Added: 26 July 2017 Updated: 26 July 2017

State Spinal Cord Injury Service

Contact

Komal Adarkar
Network Manager, State Spinal Cord Injury Service

+61 2 9464 4616

komal.adarkar@health.nsw.gov.au

Spinal Cord Injury Pain