Program strategy and governance

On this page

The Patient Reported Measures (PRMs) Program is guided by the following principles:

  1. Patient-centred: Designed to give patients a stronger voice in their care.
  2. Co-designed: Developed with input from patients, carers, clinicians and decision makers.
  3. Integrated: Applied across all care settings to provide a complete view of the patient journey.
  4. Fit-for-purpose and meaningful: Relevant and useful for diverse users, including patients, carers, clinicians and decision makers.
  5. Trusted and reputable: Evidence-based, culturally appropriate and easy to understand.
  6. Consistent: Enables comparison across care dimensions while allowing local flexibility.
  7. Universal coverage: Broadly applicable, with the ability to distinguish between different patient cohorts.
  8. Sustainable: Supports long-term, efficient and effective healthcare delivery.
  9. Transparent: Provides real-time data access across all levels of the health system.
  10. Staged implementation approach: Allows for gradual adoption with appropriate change management and support.

Governance structure

The PRMs Program is supported by a structured governance model that ensures alignment with strategic goals and effective implementation.

A three‑tier governance diagram for a health system strategy. Top tier: Strategic direction. The Health System Strategy Group sits at the center. It connects to three advisory councils: the Health System Advisory Council, the Consumer Council, and the Measurement and Intelligence Council. It also links to six Future Health Strategic Outcomes, covering patient experience, staff experience, research and innovation, value‑based care, digital enablement, and sustainability. These outcomes connect to committees including the Health Information Performance Governance Committee, the Self‑Reported Information Steering Committee, and the PRMs HOPE Steering Committee. These feed into the eHealth Integrated Care and Population Health Portfolio Governance Committee and the NSW Executive Council. Middle tier: Coordination and engagement. This tier contains Expert Advisory Groups, a Coordination and Engagement Working Group, and a Shared Stakeholders Working Group. These groups support collaboration and alignment across committees. Bottom tier: Implementation and monitoring. This tier shows statewide collection of outcome and experience measures. It includes four data streams: point‑of‑care PRMs HOPE, rapid PRMs, reflective PRMs, and population measures. Supporting groups include the Clinical Analysis Focus Group, Primary Care PRMs Coordination Group, Aboriginal Health Focus Group, Implementation and Design Working Group, Project Control Group, and the HOPE Program Delivery Team.
PRMs HOPE governance structure chart

Governance groups are responsible for:

  1. Endorsing PRMs tools, data elements, definitions, and protocols for statewide use at individual, service, and system levels.
  2. Ensuring stakeholder input – including priority populations and cultural groups – to shape tool selection and data collection methods.
  3. Overseeing the Health Outcomes and Patient Experience (HOPE) platform’s technical development to meet program needs.
  4. Guiding the implementation of HOPE across diverse clinical and care settings.
  5. Advising on education, training, and change management to support HOPE adoption.
  6. Supporting the effective use of PRMs in clinical practice through training and change strategies.
  7. Monitoring HOPE development phases, including milestones, risks, budget, benefits realisation and quality assurance.
  8. Providing strategic advice on statewide PRMs data collection and use, ensuring alignment with the overarching principles of the NSW PRMs Framework.

Resources

Patient-reported outcome measures: Methods for analysis and reporting
Methods for analysis and reporting on patient-reported outcome measures to be used by data analysts, statisticians and researchers working with PROMs data.

Capability framework
The framework defines the skills and knowledge required to collect and use PRMs effectively at the point of care.

Change and adoption strategy
This strategy supports implementation planning and behaviour change to embed PRMs into clinical practice and shared decision-making.

Stakeholder engagement and communications framework
This framework identifies key stakeholders and describes how the PRMs Program team communicates and collaborates across the system.

Analytic Principles for Patient Reported Outcome Measures
Patient-reported measures assess health-related quality of life, functional status, symptoms and symptom burden, treatment burden, health behaviours and health status. For robust assessments and conclusions, analyses take account of patient characteristics, time, data quality and fair comparisons.

Patient Reported Measures Program Formative Evaluation Report 2017
This document presents the results of the formative evaluation of the Patient Reported Measures (PRMs) Program, which is a component of the NSW Integrated Care Strategy (Strategy).

Data governance and management framework
The framework outlines principles for secure, ethical and effective management of PRMs data within the HOPE platform.

Accessing PRMs data

Clinicians, health service managers and researchers seeking access to PRMs data for analysis or reporting can use the ACI’s data request process to submit a request.

Submit a data request

Contact us

Email ACI-PRM@health.nsw.gov.au or find out how to stay informed about PRMs.
Back to top