Published: August 2026. Next review: 2031.
There are many topics to think about as you transition from children’s to adult health services.
This resource includes information to help you plan and make decisions with your healthcare service or support person. Please use together with your transition care plan. The resource does not replace professional advice.
My identity, rights and relationships
Who I am and the people who support me.
About me and my rights
Understanding your rights, laws that protect you, voting options and finding legal help.
Voting
From the Australian Electoral Commission:
- Easy read guides about elections and referendums
- Voting and election resources and services to help people with a disability or mobility restrictions
- How to enrol to vote if you are unable to sign your name
- How to remove someone from the electoral roll
Laws that protect you
- Capacity toolkit
Understanding a person's capacity to make legal, medical, financial and personal decisions - Anti-Discrimination NSW
Learn what discrimination is, rights to fair treatment and how to get help - Guardianship orders
Guardians can make decisions about a person’s health, accommodation, services or other lifestyle matters - Confidentiality in healthcare
How your information stays private in health services
Legal support
From Legal Aid NSW:
Other resources:
- How to apply to appoint a financial manager and/or guardian in NSW
- Intellectual Disability Rights Service
Free legal support and advocacy for people with intellectual or cognitive disabilities - Welfare Rights Centre
Legal help with social security and family law or Centrelink issues - Youth Law Australia
Free legal advice for young people under 25
Speaking up and getting support
Expressing your needs, using communication tools, understanding your choices and finding advocacy groups.
Advocates and advocacy groups
- Office of the NSW Advocate for Children and Young People (ACYP)
Learn about your rights in making choices - Children and Young People with Disability Australia (CYDA)
- Council for Intellectual Disability (CID)
- Disability Advocacy Network Australia (DANA)
- Department of Social Services Disability Advocacy
- Multicultural Disability Advocacy Association (MDAA)
Support for people with disability from culturally and linguistically diverse backgrounds
Support groups and resources
- Chronic Illness Peer Support (ChIPS)
Peer support program for young people with chronic illness receiving care through the Sydney Children’s Hospitals Network - Guide Dogs NSW/ACT
Services and resources for people with low vision or blindness - Deaf Connect
Auslan classes, interpreter bookings, NDIS support, and resources for deaf, deafblind and hard-of-hearing communities - Neurodivergent young people (ReachOut Australia)
Information and support including guidance on autism, ADHD, wellbeing and self-advocacy
Supports for family, friends and carers
Finding support for family, friends and carers.
For all carers
- Carer Gateway
Free services and support for anyone caring for a family member or friend with a disability, chronic illness or mental illness - Carers NSW
Support and advocates for carers in NSW - Service NSW
Support options for carers in NSW, including concessions, respite, and wellbeing programs
Caring for children with additional needs
- MyTime
Peer-support groups and resources for parents and carers of children with additional needs
Young carers
- Young Carer Program (Carers NSW)
Support for young carers (under 25) including counselling, peer groups and financial help - Livewire
An online community for young people with serious illness or disability and their siblings - Siblings Australia
Information, workshops and peer support for siblings of people with disability or chronic conditions
Mental health carers
- Mental Health Carers NSW
Information, advocacy and support for people caring for someone with a mental illness
Health and support services for Aboriginal people
Finding Aboriginal Health Services, programs and supports.
- Aboriginal community controlled health organisations
Find your nearest Aboriginal Health Service - Aboriginal Legal Service (NSW/ACT)
Free legal support and advocacy for Aboriginal and Torres Strait Islander people - Closing the Gap Program for Cheaper Medicines
Find out about the PBS co-payment program for eligible people - 715 Health Check
Aboriginal people can see their GP for a free health assessment every year - Services for Aboriginal people and communities in NSW
Directory of services for health, education, communities and businesses
My health and healthcare
Managing my health and healthcare needs.
Finding a GP and health services
Finding the health services you need.
- Finding a GP and getting a referral plus videos
- Finding a GP fact sheet (PDF)
- Healthdirect
Find doctors, health and mental health services across Australia and reliable health information and symptom checkers - Medicare Mental Health
Find mental health support that is right for you - Friendly Faces
Provides country people with information about city health services - NSW Health Mental Health Line
24/7 statewide phone service that links people with NSW Health mental health services - Virtual care: is it right for me and my family?
Learn about virtual care and when it can be used
My health information
Getting your medical information, setting up emergency contacts and tools to help communicate with people.
Accessing your information
- My Health Record (digitalhealth.gov.au)
How to keep and see your health information and records
Setting up emergency contacts
- How to set emergency contacts and medical info on your smartphone
Instructions for iPhone and Android
Tools to communicate
- Admission2Discharge Together
Tool to support people with disability or chronic conditions express their needs in hospital - My Health Cards
Easy-read picture cards to help people with intellectual disability talk about their health and prepare for appointments. Also supports communication with doctors, family and carers - My Health Matters Folder
Easy-read folder to improve communication between people with an intellectual disability, supporters and health workers - Say Less, Show More
Tools for people to express choices without words - Top 5 tool for carers
Tool for carers to share important information about the person they care for
Support and services for people with a disability
Finding disability support workers, healthcare services, assessments and services.
From the National Disability Insurance Scheme (NDIS):
- How NDIS can provide funding for disability support
- Support when someone on an NDIS plan is in hospital
Information, support and services
- Disability Gateway
Information and support for people with a disability and their carers - NSW Government disability support
Directory of information and services including education, employment, transport, housing and recreation
Support for people with intellectual disability
- Annual health checks
Get a health assessment once a year supported by Medicare to help identify unmet health needs and preventable conditions - Comprehensive Health Assessment Program (CHAP)
Tool used by GPs to assess health needs and create a health action plan - Intellectual Disability Mental Health Connect
Mental health services and supports for people with intellectual disability and their families - Statewide Intellectual Disability Health Service
NSW Health service for care planning and assessments for people with intellectual disability who have complex health needs - Statewide Intellectual Disability Mental Health Outreach Service for Adults
NSW Health specialist mental health service for people 18 years and over with intellectual disability
Where to find health information and everyday services
Find reliable information about health, sexual health, consent, and relationships and how to connect to support services.
General health information
Ask for Health
Trusted health information and resources for young people
yhunger recipes
Find budget friendly recipes and practical skills to support healthy eating, cooking and physical activity
Support services
Ask Izzy
Directory of support services, including housing, food, health, everyday needs, domestic violence help, counselling and financial help
Reproductive and sexual health
Play Safe (NSW Health)
Sexual health information, STI testing guidance, and confidential live chat with a nurse
Consent Can’t Wait
Learn about consent, healthy relationships and communication
Family Planning Australia
Reproductive and sexual health services including contraception, STI testing, pregnancy options and education for people of all ages
Planet Puberty
Puberty and relationship resources for parents and carers of young people with intellectual disability or autism
Domestic, family or sexual violence
1800 Respect
Information, counselling and support services for people impacted by domestic, family or sexual violence
Education, work and future planning
Learning, training and employment.
Education and work support
How to find support for school and university, training resources, getting a job, workplace support and learning new skills.
Your rights at school, TAFE or uni
- Your rights under the Disability Standards for Education 2005
Resources to help students with disability and their caregivers
Post-school options
- An overview of post-school options for young people with disability (ideas.org.au)
- Your rights for post-school education, including reasonable adjustments (ADCET)
- TAFE NSW's support services for students with a disability or health condition
Apprenticeships
Finding a job
- How NDIS can help with finding a job
- Employment services for teens with additional needs (raisingchildren.net.au)
Mentoring
- Career Mentoring Program
People aged 18 and above with disability can access a mentor based on your location and the industry you’re looking to work in
Money, government services and independence
Becoming independent and managing daily life.
Government benefits and services
Getting a Medicare card, setting up MyGov or Service NSW accounts and finding Centrelink payments.
Australian government services
- Create a MyGov account
How to set up a MyGov account to see many Australian government services online - Centrelink payment finder
Payments or benefits you may be able to get, like Youth Allowance or Family Tax Benefit - Disability Support Pension (DSP)
Find out if you can get the DSP and how to apply - Health Care Card
Find out if you can get a health care card, cheaper medicines and some health services - Pharmaceutical Benefits Scheme (PBS) Safety Net
Learn about the PBS Safety Net to get cheaper medicines if you or your family spend a certain amount on PBS prescriptions in a year - How to apply for a Medicare card
Learn how to get your own Medicare card; it gives access to free or cheaper healthcare in Australia
NSW government services
- Create a My Service NSW account
How to set up a My Service account to access NSW government services - NSW Photo Card
Apply for this government‑issued card for NSW residents aged 16 or over who need proof of identity, age, or address. Useful if you do not have a drivers licence
Insurance, money and how to keep it safe
Managing your money, budgeting, insurance and avoiding scams.
- Tax File Number (TFN)
How to get a TFN for work, taxes and government services - Financial Management Orders
How to get a financial manager to make financial and legal decisions on behalf of a person - Private health insurance
Find private health insurance advice from the government
Advice for managing money and budgeting
- Manage Your Money: an easy read guide (PDF)
Easy read guide on managing money for people with intellectual disability - Finances and money (for young people)
Simple tips and links for budgeting, saving and managing everyday costs - Money Smart
Learn about saving, spending and avoiding scams
Avoiding scams
- ScamWatch
How to spot a scam and protect your money
Transport and travel
How to get to NSW Health services and where to park; find support if travelling from the country; and public transport and accessible transport options.
- Travel tips for people living with disability
Information for people living with disability and their supporters
Getting to NSW Health services
- Directions to NSW Health services and parking
- Isolated Patients Travel and Accommodation Assistance (IPTAAS) Scheme
Help to cover travel and accommodation costs for eligible NSW patients needing specialised health treatment far from home - Patient Transport Service
Learn about transport to and from health services for eligible patients - Mobility parking permit
How to apply for a mobility parking permit to access disability parking spaces
Public transport
- Transport NSW eligibility and concessions (Opal cards)
- Taxi Transport Subsidy Scheme (NSW)
Fare subsidy for people with severe, permanent disability who cannot use public transport independently
Safety and wellbeing
Staying safe and well.
Being safe online
Use the internet and social media safely and learn how to protect your information.
For everyone
eSafety Commissioner
Learn about staying safe, respectful and empowered online
GameAware
Information and support services for healthier video gaming
For young people
Online safety for young people
How to use the internet safely and report harmful online experiences
Internet safety cards (SECCA)
Printable cards to help people with intellectual disability understand and practice safe online behaviour
For parents and carers
Cyber Safe Parents
Practical online safety advice, including information for families supporting young people with disability
Interaction Services Online Safety Training
Education modules about online safety for young people living with disability for parents and carers