Published: August 2020. Next review: 2026.
This project researched young people transitioning from children’s to adult health services in NSW and ACT who need Botulinum Toxin A (BoNT-A) treatment.
The report:
- outlines the young people’s characteristic and needs
- identifies key areas that will improve the experience and outcomes for these young people, their families and carers.
The report includes key findings which can be used as a resource for service planning and development.
Service directory
Find BoNT-A services across NSW and ACT
Project background
The successful healthcare transition for young people with neurological conditions (such as spinal cord injury, cerebral palsy and acquired brain injury) often includes consideration of their BoNT-A treatment. This is a common treatment where BoNT-A is injected into multiple muscles to manage spasticity.
There are various factors that influence the experiences of a young person transitioning between paediatric and adult BoNT-A services.
Dr Simon Paget and Dr Jane Ho from the Sydney Children’s Hospital Network undertook the project and prepared the report for the Agency for Clinical Innovation’s Transition Care Network and Rehabilitation Network.