Intellectual Disability Network Resources
These resources relate to the care and health of people with intellectual disability across all ages, including acquired brain injuries by enhancing the capacity of primary and secondary health services.
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Capacity and Consent with a focus on Intellectual Disability or Cognitive Impairment
https://aci.health.nsw.gov.au/resources/intellectual-disability/other/capacity-and-consent-with-a-focus-on-intellectual-disability-or-cognitive-impairment
Format: Webpage
Updated: 2 April 2020
Collaborative work (Rehab, MH and ID Networks) Health - NDIS Interface webinar
https://aci.health.nsw.gov.au/resources/intellectual-disability/other/collaborative-work-rehab,-mh-and-id-networks-health-ndis-interface-webinar
Format: Webpage
Updated: 6 March 2020
Annual Forum 2015 - Hospitalisation Co-Design
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/283988/Annual_Forum_2015-Hospitalisation_Co-Design.pdf
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Updated: 18 September 2015
Annual Forum 2015 - Planning to meet the health needs of people with disability in the transition to the NDIS
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0012/283989/Annual_Forum_2015-Planning_to_meet_the_health_needs_of_people_with_disability_in_the_transition_to_the_NDIS.pdf
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Updated: 18 September 2015
Annual Forum 2015 - Say Less Show More
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/283990/Annual_Forum_2015-Say_Less_Show_More.pdf
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Updated: 18 September 2015
Annual Forum 2015 - Schoolkit clinics
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/283991/Annual_Forum_2015-Schoolkit_clinics.pdf
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Updated: 18 September 2015
Annual Forum 2015 - Specialised IDH services and beyond
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/283992/Annual_Forum_2015-Specialised_IDH_services_and_beyond.pdf
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Updated: 18 September 2015
Annual Forum 2015 - Towards a Blueprint for Health Services for People with Intellectual Disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/283993/Annual_Forum_2015-Towards_a_Blueprint_for_Health_Services_for_People_with_Intellectual_Disability.pdf
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Updated: 18 September 2015
Annual Forum 2015 - What people have told us
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/283994/Annual_Forum_2015-What_people_have_told_us.pdf
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Updated: 18 September 2015
Global Partnerships in Intellectual Disability Symposium video
http://aci.mediahouseplus.com/intellectual-disabilty-health-symposium/view/live
Format: Webpage
Updated: 16 November 2020
Intellectual Disability Annual Forum 2019
https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/ID-forum-2019
Format: Webpage
Updated: 13 May 2019
Intellectual Disability Network Forum 2014
https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/ID-forum-2014
Format: Webpage
Updated: 26 July 2016
Primary Health Forum
https://aci.health.nsw.gov.au/__data/assets/audio_file/0006/188088/Primary-Health-Forum.mp3
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Updated: 16 November 2020
Transitioning to adult health services: young people with intellectual disability
https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/transitioning-to-adult-health-services
Format: Webpage
Updated: 30 May 2019
Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
http://bmjopen.bmj.com/content/7/4/e015627
Format: Webpage
Updated: 16 November 2020
Guidelines on Research Inclusive of People with Intellectual Disability
https://aci.health.nsw.gov.au/resources/intellectual-disability/research/guidelines-research-id
Format: Webpage
Updated: 24 August 2015
Intellectual Disability Network: Guidelines for Research Discussion Paper
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0014/203702/Guidelines_Discussion_Paper_Final_28_Oct_2013.pdf
Intellectual Disability Roundtable Discussion Summary
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/206128/ID-Rountable-summary-Nov2013.pdf
Intellectual Disability Network: Research Survey Analysis
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/203703/ID_Network_Project_Final_Report_11_Nov_2013.pdf
Report of the Needs Assessment of the Metro-Regional Intellectual Disability Pilot
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/448508/MRID_Service-Providers-Needs-Assessment-Report-30_10_14.pdf
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Updated: 3 October 2018
Making Mental Health Policy Inclusive of People with Intellectual Disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/318001/Policy_analysis_Plain_English_Summary.pdf
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Updated: 28 June 2016
Making Mental Health Policy Inclusive of People with Intellectual Disability: A summary for policy makers
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0014/318002/Policy_analysis_Summary_for_Policy_Makers.pdf
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Updated: 28 June 2016
Making Mental Health Policy Inclusive of People with Intellectual Disability: A summary for service providers
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/318003/Policy_analysis_Summary_for_Service_Providers.pdf
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Updated: 28 June 2016
Australian Government Department of Education Employment and Workplace Relations - 'More Support for Students with Disabilities'
https://docs.education.gov.au/category/program-46
Format: Webpage
Updated: 4 December 2020
Clear Written Communications. The Easy English Style Guide - Scope Vic
http://www.scopevic.org.au/wp-content/uploads/2015/02/Clear-Written-Communications.-The-Easy-English-Style-Guide..pdf
Format: PDF File
Updated: 16 November 2020
Every Student Every School: learning and support - NSW Department of Education and Training
http://www.dec.nsw.gov.au/what-we-offer/education-and-training/disability-support/every-student-every-school
Format: Webpage
Updated: 16 November 2020
Intellectual Disability Mental Health elearning
http://www.idhealtheducation.edu.au/
Format: Webpage
Updated: 16 November 2020
Intellectual Disability Training Videos
https://aci.health.nsw.gov.au/resources/intellectual-disability/intellectual_disability_training/id-training-videos
Format: Webpage
Updated: 6 June 2017
The Children's Hospital at Westmead - School Link - Mental Health and Intellectual Disability for Young People e-list
http://www.schoollink.chw.edu.au/e-list/
Format: Webpage
Updated: 16 November 2020
Analysis of Costs and Benefits of Specialised Intellectual Disability Health Services
http://www.health.nsw.gov.au/pubs/2010/pdf/nsw_health_analysis.pdf#zoom=100
Format: PDF File
Updated: 16 November 2020
Being involved in a subcommittee of the ID Network
https://aci.health.nsw.gov.au/resources/intellectual-disability/network_updates_and_information/being-involved-in-the-ID-network
Format: Webpage
Updated: 26 July 2016
Improving care for people with intellectual disabilities across the life span
https://aci.health.nsw.gov.au/__data/assets/powerpoint_doc/0011/159815/forum_presentation.ppt
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Updated: 16 November 2020
Intellectual Disability Network Newsletter - December 2016
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/343672/id-network-news-dec-2016.pdf
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Updated: 19 December 2016
Intellectual Disability Network Newsletter - December 2014
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0012/253002/id-network-news-dec2014.pdf
Intellectual Disability Network Newsletter - March 2015
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/266660/ID_Health_Network_Newsletter_March_2015.pdf
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Updated: 16 April 2015
The ACI Intellectual Disability Network
https://aci.health.nsw.gov.au/__data/assets/powerpoint_doc/0010/159814/sc_presentation.ppt
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Updated: 16 November 2020
SPRC Literature review on models of health service delivery
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/273176/SPRC_Literature_review_on_models_of_health_service_delivery.pdf
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Updated: 11 June 2015
Circle of support
https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/circle-of-support
Format: Webpage
Updated: 9 November 2018
Creating Inclusive NSW Hospitals
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/307157/Creating_Inclusive_NSW_Hospitals.pdf
Format: PDF File (99.0 KB) Alternate Content:
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Updated: 12 May 2016
Discharges from Hospital - Intellectual Disability Case Studies
https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/discharges-from-hospital-intellectual-disability-case-studies
Format: Webpage
Updated: 8 February 2016
Improving the experience of hospitalisation for people with intellectual disability
https://aci.health.nsw.gov.au/resources/patient-experience/stories/improving-the-experience
Format: Webpage
Updated: 13 February 2017
People with disability and hospitalisation: Challenges and opportunities in NSW
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/307159/NSW_Hospitalisation_background_paper_final.pdf
Format: PDF File (194.6 KB) Alternate Content:
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Updated: 12 May 2016
Preventing deaths of people with disabilities in care - Information for General Practitioners
http://www.ombo.nsw.gov.au/__data/assets/pdf_file/0005/9473/Information-for-General-Practitioners-fact-sheet-3.pdf
Format: PDF File
Updated: 16 November 2020
Responding to Needs of People with Disability during Hospitalisation
The Policy Directive sets out guiding principles for responding to needs of people with disability including inclusion, person-centred services, accessibility, communication, and reasonable adjustment. This policy is to be implemented in conjunction with other NSW Health policies relevant to, treatment in, and transfer out of hospital as referenced in the policy.
http://www0.health.nsw.gov.au/policies/pd/2008/PD2008_010.html
Format: Webpage
Updated: 16 November 2020
Say Less Show More
https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/say-less-show-more
Format: Webpage
Updated: 9 November 2018
CHW School-Link - Jodie Caruana
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/256015/Dual_Diagnosis291014_Jodie_Caruana.pdf
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Updated: 10 February 2015
School Clinics - Lif O’Connor
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/256014/Dual_Diagnosis_A_forum_on_Mental_Health_and_ID_Lif_OConnor.pdf
Developmental Psychiatry: MH for C&A with ID & ASD History, Concepts, Challenges and the Future
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/256016/Griffith_Liverpool.pdf
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Updated: 10 February 2015
Dual Diagnosis - Hadia Baassiri
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/256017/ID_for_TMHC1.pdf
Assessing health needs of children with intellectual disabilities: a formative evaluation of a pilot service
http://www.tandfonline.com/eprint/kn2vr8wyPHt8c6VZ58Hr/full
Format: Webpage
Updated: 16 November 2020
Childhood disability in Aboriginal and Torres Strait Islander peoples: a literature review
http://www.equityhealthj.com/content/pdf/1475-9276-12-7.pdf
Format: PDF File
Updated: 16 November 2020
Guideline on the Pathways to Care for children and adolescents with intellectual disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/276992/ID-guidelines-pathways.pdf
Format: PDF File (840.0 KB) Alternate Content:
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Updated: 8 July 2015
Is My Child Normal – Milestones and Red Flags for Referral
http://www.racgp.org.au/download/documents/AFP/2011/September/201109oberklaid.pdf
Format: PDF File
Updated: 16 November 2020
Metro-Regional Intellectual Disability Network Schoolkit
http://schoolkit.org.au/
Format: Webpage
Updated: 16 November 2020
Say Less Show More
https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/say-less-show-more
Format: Webpage
Updated: 9 November 2018
Jenny Martin: Effective Service Delivery for People with an Intellectual Disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/275729/Jenny_Martin_Effective_Service_Delivery_for_People_with_an_Intellectual_Disability.pdf
Format: PDF File (295.3 KB) Alternate Content:
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Updated: 2 July 2015
Jo Han: Summary Analysis of people admitted with Intellectual Disability in the NSW Public Health System
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/275730/Jo_Han_Summary_Analysis_of_people_admitted_with_Intellectual_Disability_in_the_NSW_Public_Health_System.pdf
Format: PDF File (173.2 KB) Alternate Content:
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Updated: 30 June 2015
Les White: Setting the Scene
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/275731/Les_White_Setting_the_Scene.pdf
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Updated: 30 June 2015
Louise Farrell: MoH update
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/275732/Louise_Farrell_MoH_update.pdf
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Updated: 30 June 2015
Lucy Veller: Partnering with Disability Services to develop a Disability Action Plan
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/275872/Lucy_Veller_Partnering_with_Disability_Services_to_develop_a_Disability_Action_Plan.pdf
Format: PDF File (1.7 MB) Alternate Content:
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Updated: 2 July 2015
Intellectual Disability Toolkit
https://aci.health.nsw.gov.au/resources/intellectual-disability/toolkit/intellectual-disability-toolkit
Format: Webpage
Updated: 24 August 2015
Co-Design Project - ID Health Network and MRID 2016
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/334086/Co-Design_Project_ID_Health_Network_MRID_2016.pdf
Format: PDF File (1.3 MB) Alternate Content:
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Updated: 29 September 2016
NSW Health & Ageing and Disability and Home Care (ADHC) Joint Guideline
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/203701/MOU_ADHC_Health_2013.pdf
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Updated: 22 November 2013
2010 - 2020 National Disability Strategy - An initiative of the Council of Australian Governments
https://www.dss.gov.au/sites/default/files/documents/11_2013/national_disability_strategy_2010-2020_0.pdf
Format: PDF File
Updated: 4 December 2020
National Disability Insurance Scheme
http://www.ndis.gov.au/
Format: Webpage
Updated: 16 November 2020
National Disability Services policy paper on improving the experiences of people with disability in hospital.
http://www.nds.org.au/asset/view_document/979323768
Format: Webpage
Updated: 16 November 2020
Accessible Mental Health Services for People with an Intellectual Disability: A Guide for Providers
http://3dn.unsw.edu.au/the-guide
Format: Webpage
Updated: 16 November 2020
Accessing NSW Health Services for People with Intellectual Disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/201732/Accessing-Health-Services-2017.pdf
Going To The Doctor - Accessible information for people with an intellectual disability
http://3dn.unsw.edu.au/content/going-doctor
Format: Webpage
Updated: 16 November 2020
Provided there’s transport: transport as a barrier to accessing health care in NSW
https://www.ncoss.org.au/sites/default/files/121206health-transport-report.pdf
Format: PDF File
Updated: 16 November 2020
Being a Healthy Woman
http://www.health.nsw.gov.au/disability/Pages/being-a-healthy-woman.aspx
Format: Webpage
Updated: 16 November 2020
Psychotropic Medication - Accessible Information for people with an intellectual disability and their carers
http://3dn.unsw.edu.au/content/psychotropic-medication
Format: Webpage
Updated: 16 November 2020
Launch of Illawarra Shoalhaven Local Health District Action Plan
http://www.humanrights.gov.au/news/speeches/launch-illawarra-shoalhaven-local-health-district-action-plan
Format: Webpage
Updated: 16 November 2020
Service Framework: to improve the health care of people with intellectual disability
http://www.health.nsw.gov.au/disability/Pages/health-care-of-people-with-ID.aspx
Format: Webpage
Updated: 16 November 2020
SESIAHS Disability Action Plan 2010-2015
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/153490/sesiahsdisabilityactionpl.pdf
Directory of mental health services in New South Wales (www.wayahead.org.au)
http://www.wayahead.org.au
Format: Webpage
Updated: 16 November 2020
Health Status of People with Disability
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/153466/disability_health_status.pdf
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Updated: 29 June 2011
Health Care in People with Intellectual Disability Guidelines
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0016/231514/Health_Care_in_People_with_Intellectual_Disability_Guidelines.pdf
Learning Disabilities Resource List
http://www.pifonline.org.uk/wp-content/uploads/2013/12/Learning-Disabilities-Resource-List-Dec-13-Final.pdf#zoom=100
Format: PDF File
Updated: 16 November 2020
Provision of Services to People with an Intellectual Disability and Mental Illness - MOU & Guidelines
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/203699/MOU_-_Mental_Health_and_ID.pdf
Format: PDF File (48.5 KB) Alternate Content:
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Updated: 22 November 2013
NSW Council for Intellectual Disability - Factsheets
https://cid.org.au/resource/health-fact-sheets/
Format: Webpage
Updated: 4 December 2020
NSW Funding ABF
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/230769/NSW-Funding-ABF.pdf
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Updated: 26 June 2014
The United Nations Conventionon the Rights of People with Disabilities
https://www.humanrights.gov.au/our-work/disability-rights/international/united-nations-convention-rights-persons-disabilities
Format: Webpage
Updated: 16 November 2020
ID Essentials
Building capability in NSW health services for people with intellectual disability: the Essentials
The purpose of the Essentials is to help improve health services to people with intellectual disability in NSW.
This resource will guide health services sector staff and other service providers to better understand and meet the complex and multiple health needs of people with an intellectual disability and their carers.
https://aci.health.nsw.gov.au/resources/intellectual-disability/id-essentials/home
Format: Webpage
Updated: 16 November 2020
Intellectual Disability Network
Contact
Annette Zucco
Intellectual Disability Network Manager