Intellectual Disability Resources

These resources relate to the care and health of people with intellectual disability across all ages, including acquired brain injuries by enhancing the capacity of primary and secondary health services.

Annual Forum 2015 - Hospitalisation Co-Design

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/283988/Annual_Forum_2015-Hospitalisation_Co-Design.pdf

Format: PDF File (671.4 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - Planning to meet the health needs of people with disability in the transition to the NDIS

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0012/283989/Annual_Forum_2015-Planning_to_meet_the_health_needs_of_people_with_disability_in_the_transition_to_the_NDIS.pdf

Format: PDF File (143.9 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - Say Less Show More

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/283990/Annual_Forum_2015-Say_Less_Show_More.pdf

Format: PDF File (984.2 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - Schoolkit clinics

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/283991/Annual_Forum_2015-Schoolkit_clinics.pdf

Format: PDF File (139.0 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - Specialised IDH services and beyond

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/283992/Annual_Forum_2015-Specialised_IDH_services_and_beyond.pdf

Format: PDF File (704.0 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - Towards a Blueprint for Health Services for People with Intellectual Disability

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/283993/Annual_Forum_2015-Towards_a_Blueprint_for_Health_Services_for_People_with_Intellectual_Disability.pdf

Format: PDF File (911.3 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Annual Forum 2015 - What people have told us

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/283994/Annual_Forum_2015-What_people_have_told_us.pdf

Format: PDF File (535.6 KB) Alternate Content: --

Subcategory: Forums Resource Type: Presentations

Added: 18 September 2015 Updated: 18 September 2015

Global Partnerships in Intellectual Disability Symposium video

http://aci.mediahouseplus.com/intellectual-disabilty-health-symposium/view/live

Format: Webpage

Subcategory: Forums Resource Type: Presentations

Added: 6 September 2016 Updated: 6 September 2016

Intellectual Disability Annual Forum 2019

Presentation videos from the event

https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/ID-forum-2019

Format: Webpage

Subcategory: Forums Resource Type: Presentations

Added: 13 May 2019 Updated: 13 May 2019

Intellectual Disability Network Forum 2014

https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/ID-forum-2014

Format: Webpage

Subcategory: Forums Resource Type: Other

Added: 2 April 2014 Updated: 26 July 2016

Primary Health Forum

https://aci.health.nsw.gov.au/__data/assets/mp3_file/0006/188088/Primary-Health-Forum.mp3

Format: Audio File (20.4 MB) Alternate Content: --

Subcategory: Forums Resource Type: Other

Added: 6 June 2013 Updated: 6 June 2013

Transitioning to adult health services: young people with intellectual disability

This event listened to the voice of the young person and showcased research and examples of service delivery, new and developing models of care.

https://aci.health.nsw.gov.au/resources/intellectual-disability/forums/transitioning-to-adult-health-services

Format: Webpage

Subcategory: Forums Resource Type: Presentations

Added: 15 May 2019 Updated: 30 May 2019

Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia

This study aims to interrogate a large linked administrative data set containing hospital admissions, presentations to emergency departments and mortality data to provide evidence to inform the development of improved health and mental health services for this population.

http://bmjopen.bmj.com/content/7/4/e015627

Format: Webpage

Subcategory: Research Resource Type: Reports

Added: 20 April 2017 Updated: 20 April 2017

Guidelines on Research Inclusive of People with Intellectual Disability

The Guidelines assist in evaluating whether research relating to people with an intellectual disability is inclusive of them, especially when considering whether to support / partner with others in research activities.

https://aci.health.nsw.gov.au/resources/intellectual-disability/research/guidelines-research-id

Format: Webpage

Subcategory: Research Resource Type: Implementation Guides

Added: 2 July 2015 Updated: 24 August 2015

Intellectual Disability Network: Guidelines for Research Discussion Paper

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0014/203702/Guidelines_Discussion_Paper_Final_28_Oct_2013.pdf

Format: PDF File (200.4 KB) Alternate Content: Plain Text

Subcategory: Research Resource Type: Reports

Added: 22 November 2013 Updated: 22 November 2013

Intellectual Disability Roundtable Discussion Summary

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/206128/ID-Rountable-summary-Nov2013.pdf

Format: PDF File (86.6 KB) Alternate Content: Plain Text

Subcategory: Research Resource Type: Minutes

Added: 22 January 2014 Updated: 22 January 2014

Intellectual Disability Network: Research Survey Analysis

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/203703/ID_Network_Project_Final_Report_11_Nov_2013.pdf

Format: PDF File (973.3 KB) Alternate Content: Plain Text

Subcategory: Research Resource Type: Reports

Added: 22 November 2013 Updated: 22 November 2013

Investigating Current Research into Intellectual Disability in NSW

https://aci.health.nsw.gov.au/resources/intellectual-disability/research/investigating-current-research-into-intellectual-disability-in-nsw

Format: Webpage

Subcategory: Research Resource Type: Other

Added: 10 May 2016 Updated: 10 May 2016

Report of the Needs Assessment of the Metro-Regional Intellectual Disability Pilot

This report summarises a needs assessment that was conducted as part of the Metro Regional Intellectual Disability Network Pilot Project (MRID.net) formative evaluation. The needs assessment consists of a series of focus group interviews and surveys that were administered for service providers during a Forum held in November 2011 at the University of Wollongong.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/448508/MRID_Service-Providers-Needs-Assessment-Report-30_10_14.pdf

Format: PDF File (1.2 MB) Alternate Content: --

Subcategory: Research Resource Type: Reports

Added: 3 October 2018 Updated: 3 October 2018

Making Mental Health Policy Inclusive of People with Intellectual Disability

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/318001/Policy_analysis_Plain_English_Summary.pdf

Format: PDF File (270.7 KB) Alternate Content: --

Subcategory: Research Resource Type: Articles

Added: 28 June 2016 Updated: 28 June 2016

Making Mental Health Policy Inclusive of People with Intellectual Disability: A summary for policy makers

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0014/318002/Policy_analysis_Summary_for_Policy_Makers.pdf

Format: PDF File (264.9 KB) Alternate Content: --

Subcategory: Research Resource Type: Articles

Added: 28 June 2016 Updated: 28 June 2016

Making Mental Health Policy Inclusive of People with Intellectual Disability: A summary for service providers

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/318003/Policy_analysis_Summary_for_Service_Providers.pdf

Format: PDF File (264.9 KB) Alternate Content: --

Subcategory: Research Resource Type: Articles

Added: 28 June 2016 Updated: 28 June 2016

Australian Government Department of Education Employment and Workplace Relations - 'More Support for Students with Disabilities'

http://www.deewr.gov.au/schooling/programs/pages/moresupportforswd.aspx

Format: Webpage

Subcategory: Education and Training Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Clear Written Communications. The Easy English Style Guide - Scope Vic

http://www.scopevic.org.au/wp-content/uploads/2015/02/Clear-Written-Communications.-The-Easy-English-Style-Guide..pdf

Format: PDF File

Subcategory: Education and Training Resource Type: External Links

Added: 19 June 2014 Updated: 25 July 2014

Every Student Every School: learning and support - NSW Department of Education and Training

http://www.dec.nsw.gov.au/what-we-offer/education-and-training/disability-support/every-student-every-school

Format: Webpage

Subcategory: Education and Training Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Intellectual Disability Mental Health elearning

http://www.idhealtheducation.edu.au/

Format: Webpage

Subcategory: Education and Training Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Intellectual Disability Training Videos

https://aci.health.nsw.gov.au/resources/intellectual-disability/intellectual_disability_training/id-training-videos

Format: Webpage

Subcategory: Education and Training Resource Type: Presentations

Added: 26 June 2014 Updated: 6 June 2017

The Children's Hospital at Westmead - School Link - Mental Health and Intellectual Disability for Young People e-list

http://www.schoollink.chw.edu.au/e-list/

Format: Webpage

Subcategory: Education and Training Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Analysis of Costs and Benefits of Specialised Intellectual Disability Health Services

http://www.health.nsw.gov.au/pubs/2010/pdf/nsw_health_analysis.pdf#zoom=100

Format: PDF File

Subcategory: Network Updates and Information Resource Type: External Links

Added: 19 June 2014 Updated: 25 July 2014

Being involved in a subcommittee of the ID Network

https://aci.health.nsw.gov.au/resources/intellectual-disability/network_updates_and_information/being-involved-in-the-ID-network

Format: Webpage

Subcategory: Network Updates and Information Resource Type: Consumer Information

Added: 10 August 2012 Updated: 26 July 2016

Improving care for people with intellectual disabilities across the life span

https://aci.health.nsw.gov.au/__data/assets/powerpoint_doc/0011/159815/forum_presentation.ppt

Format: MS PowerPoint Document (742.5 KB) Alternate Content: --

Subcategory: Network Updates and Information Resource Type: Presentations

Added: 18 November 2011 Updated: 13 February 2012

Intellectual Disability Network Newsletter - December 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/343672/id-network-news-dec-2016.pdf

Format: PDF File (592.7 KB) Alternate Content: --

Subcategory: Network Updates and Information Resource Type: Other

Added: 19 December 2016 Updated: 19 December 2016

Intellectual Disability Network Newsletter - December 2014

Updates about the people and programs from the Intellectual Disability Health Network

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0012/253002/id-network-news-dec2014.pdf

Format: PDF File (551.8 KB) Alternate Content: Plain Text

Subcategory: Network Updates and Information Resource Type: Newsletters

Added: 19 December 2014 Updated: 19 December 2014

Intellectual Disability Network Newsletter - March 2015

Update on the work of the Intellectual Disability Network

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/266660/ID_Health_Network_Newsletter_March_2015.pdf

Format: PDF File (169.9 KB) Alternate Content: --

Subcategory: Network Updates and Information Resource Type: Newsletters

Added: 16 April 2015 Updated: 16 April 2015

The ACI Intellectual Disability Network

https://aci.health.nsw.gov.au/__data/assets/powerpoint_doc/0010/159814/sc_presentation.ppt

Format: MS PowerPoint Document (632.5 KB) Alternate Content: --

Subcategory: Network Updates and Information Resource Type: Presentations

Added: 18 November 2011 Updated: 13 February 2012

SPRC Literature review on models of health service delivery

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/273176/SPRC_Literature_review_on_models_of_health_service_delivery.pdf

Format: PDF File (1.1 MB) Alternate Content: --

Subcategory: Network Updates and Information Resource Type: Other

Added: 11 June 2015 Updated: 11 June 2015

Circle of support

https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/circle-of-support

Format: Webpage

Subcategory: Hospitalisation Resource Type: Other

Added: 23 October 2018 Updated: 9 November 2018

Creating Inclusive NSW Hospitals

Source: National Disability Services, NSW - July 2014

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/307157/Creating_Inclusive_NSW_Hospitals.pdf

Format: PDF File (99.0 KB) Alternate Content: --

Subcategory: Hospitalisation Resource Type: Reports

Added: 12 May 2016 Updated: 12 May 2016

Discharges from Hospital - Intellectual Disability Case Studies

Case studies and the discussion of ten discharge scenarios based on the experiences of people with an intellectual disability.

https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/discharges-from-hospital-intellectual-disability-case-studies

Format: Webpage

Subcategory: Hospitalisation Resource Type: Clinician Summaries

Added: 14 January 2015 Updated: 8 February 2016

Improving the experience of hospitalisation for people with intellectual disability

Daniel's story of his experience of hospitalisation, with tips for best practice of caring for people with intellectual disability in hospital

https://aci.health.nsw.gov.au/resources/patient-experience/stories/improving-the-experience

Format: Webpage

Subcategory: Hospitalisation Resource Type: Web Resources

Added: 21 June 2016 Updated: 13 February 2017

People with disability and hospitalisation: Challenges and opportunities in NSW

Source: National Disability Services, NSW - April 2014

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/307159/NSW_Hospitalisation_background_paper_final.pdf

Format: PDF File (194.6 KB) Alternate Content: --

Subcategory: Hospitalisation Resource Type: Reports

Added: 12 May 2016 Updated: 12 May 2016

Preventing deaths of people with disabilities in care - Information for General Practitioners

http://www.ombo.nsw.gov.au/__data/assets/pdf_file/0005/9473/Information-for-General-Practitioners-fact-sheet-3.pdf

Format: PDF File

Subcategory: Hospitalisation Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Responding to Needs of People with Disability during Hospitalisation

The Policy Directive sets out guiding principles for responding to needs of people with disability including inclusion, person-centred services, accessibility, communication, and reasonable adjustment. This policy is to be implemented in conjunction with other NSW Health policies relevant to, treatment in, and transfer out of hospital as referenced in the policy.

http://www0.health.nsw.gov.au/policies/pd/2008/PD2008_010.html

Format: Webpage

Subcategory: Hospitalisation Resource Type: Clinical Guidelines

Added: 12 February 2015 Updated: 12 February 2015

Say Less Show More

The Say Less Show More initiative seeks to support all children including those with a disability, their parents and carers with a series of simple photo stories (visuals) that illustrate what will happen during a physical examination or blood test.

https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/say-less-show-more

Format: Webpage

Subcategory: Hospitalisation Resource Type: Web Resources

Added: 28 January 2016 Updated: 9 November 2018

CHW School-Link - Jodie Caruana

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/256015/Dual_Diagnosis291014_Jodie_Caruana.pdf

Format: PDF File (3.3 MB) Alternate Content: --

Subcategory: Dual Diagnosis: A Forum on Mental Health and Intellectual Disability Resource Type: Presentations

Added: 10 February 2015 Updated: 10 February 2015

School Clinics - Lif O’Connor

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/256014/Dual_Diagnosis_A_forum_on_Mental_Health_and_ID_Lif_OConnor.pdf

Format: PDF File (472.9 KB) Alternate Content: Plain Text

Subcategory: Dual Diagnosis: A Forum on Mental Health and Intellectual Disability Resource Type: Presentations

Added: 10 February 2015 Updated: 10 February 2015

Developmental Psychiatry: MH for C&A with ID & ASD History, Concepts, Challenges and the Future

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/256016/Griffith_Liverpool.pdf

Format: PDF File (3.4 MB) Alternate Content: --

Subcategory: Dual Diagnosis: A Forum on Mental Health and Intellectual Disability Resource Type: Presentations

Added: 10 February 2015 Updated: 10 February 2015

Dual Diagnosis - Hadia Baassiri

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/256017/ID_for_TMHC1.pdf

Format: PDF File (993.2 KB) Alternate Content: Plain Text

Subcategory: Dual Diagnosis: A Forum on Mental Health and Intellectual Disability Resource Type: Presentations

Added: 10 February 2015 Updated: 10 February 2015

Assessing health needs of children with intellectual disabilities: a formative evaluation of a pilot service

http://www.tandfonline.com/eprint/kn2vr8wyPHt8c6VZ58Hr/full

Format: Webpage

Subcategory: Children's Services Resource Type: External Links

Added: 23 May 2016 Updated: 23 May 2016

Childhood disability in Aboriginal and Torres Strait Islander peoples: a literature review

http://www.equityhealthj.com/content/pdf/1475-9276-12-7.pdf

Format: PDF File

Subcategory: Children's Services Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Guideline on the Pathways to Care for children and adolescents with intellectual disability

This guideline is intended to assist parents and carers to make sense of the system which exists to support them and their child with intellectual disability and challenging behaviour and / or mental health problems, at different stages and ages.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/276992/ID-guidelines-pathways.pdf

Format: PDF File (840.0 KB) Alternate Content: --

Subcategory: Children's Services Resource Type: Clinical Guidelines

Added: 8 July 2015 Updated: 8 July 2015

Is My Child Normal – Milestones and Red Flags for Referral

Article reprinted from Australian Family Physician Vol. 40, No. 9, September 2011.

http://www.racgp.org.au/download/documents/AFP/2011/September/201109oberklaid.pdf

Format: PDF File

Subcategory: Children's Services Resource Type: Articles

Added: 6 March 2017 Updated: 6 March 2017

Metro-Regional Intellectual Disability Network Schoolkit

The MRID Schoolkit provides the key tools to help set up and maintain school-based clinics to support children and adolescents with complex needs. Schoolkit Clinics bring together the people involved in a student’s care in round-table discussions to address health and educational issues in a holistic manner. Schoolkit Transition Clinics focus specifically on the major changes involved in moving on to post-school life.

http://schoolkit.org.au/

Format: Webpage

Subcategory: Children's Services Resource Type: Toolkits

Added: 29 April 2015 Updated: 29 April 2015

Say Less Show More

https://aci.health.nsw.gov.au/resources/intellectual-disability/hospitalisation/say-less-show-more

Format: Webpage

Subcategory: Children's Services Resource Type: Web Resources

Added: 28 January 2016 Updated: 9 November 2018

Jenny Martin: Effective Service Delivery for People with an Intellectual Disability

Jenny Martin (Director Allied Health Children, Young People & Families Hunter New England Local Health District) speaks of the effective delivery of health services for people with ID HNELHD, alongside the launch of the National Disability Insurance Scheme.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/275729/Jenny_Martin_Effective_Service_Delivery_for_People_with_an_Intellectual_Disability.pdf

Format: PDF File (295.3 KB) Alternate Content: --

Subcategory: Solution Design Workshop Resource Type: Presentations

Added: 30 June 2015 Updated: 30 June 2015

Jo Han: Summary Analysis of people admitted with Intellectual Disability in the NSW Public Health System

Jo Han (Data and Statistical Analyst, ACI Health Economics and Analysis Team) discusses the findings from the summary analysis of people admitted with Intellectual Disability in the NSW Public Health System and the need for further work in this area in collaboration with clinicians.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/275730/Jo_Han_Summary_Analysis_of_people_admitted_with_Intellectual_Disability_in_the_NSW_Public_Health_System.pdf

Format: PDF File (173.2 KB) Alternate Content: --

Subcategory: Solution Design Workshop Resource Type: Presentations

Added: 30 June 2015 Updated: 30 June 2015

Les White: Setting the Scene

Les White (NSW Chief Paediatrician and ACI ID Health Network Co-Chair) gives a short history of the ID Health Network, it's current work and how the Solution Design Workshop will help to shape the Blueprint.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/275731/Les_White_Setting_the_Scene.pdf

Format: PDF File (945.8 KB) Alternate Content: --

Subcategory: Solution Design Workshop Resource Type: Presentations

Added: 30 June 2015 Updated: 30 June 2015

Louise Farrell: MoH update

Louise Farrell (A/Assoc. Director Integrated Care Branch) and James Dunne (A/Director, Social Policy Implementation Office; Government Relations Branch) speak of the NSW Ministry of Health's Integrated Care Strategy, work in the areas of Disability Inclusion and Carers, and the delivery of health services during a period of disability reform.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/275732/Louise_Farrell_MoH_update.pdf

Format: PDF File (524.2 KB) Alternate Content: --

Subcategory: Solution Design Workshop Resource Type: Presentations

Added: 30 June 2015 Updated: 30 June 2015

Lucy Veller: Partnering with Disability Services to develop a Disability Action Plan

Lucia Vellar (Diversity Health Coordinator, Clinical Governance Unit; Illawarra Shoalhaven Local Health District) speaks about partnering with disability services to develop a Disability Inclusion Action Plan.

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/275872/Lucy_Veller_Partnering_with_Disability_Services_to_develop_a_Disability_Action_Plan.pdf

Format: PDF File (1.7 MB) Alternate Content: --

Subcategory: Solution Design Workshop Resource Type: Presentations

Added: 2 July 2015 Updated: 2 July 2015

Intellectual Disability Toolkit

Resources to support the healthcare of people with an Intellectual Disability in NSW

https://aci.health.nsw.gov.au/resources/intellectual-disability/toolkit/intellectual-disability-toolkit

Format: Webpage

Subcategory: Toolkit Resource Type: Toolkits

Added: 1 July 2015 Updated: 24 August 2015

Co-Design Project - ID Health Network and MRID 2016

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/334086/Co-Design_Project_ID_Health_Network_MRID_2016.pdf

Format: PDF File (1.3 MB) Alternate Content: --

Subcategory: Collaborative Projects Resource Type: Presentations

Added: 29 September 2016 Updated: 29 September 2016

NSW Health & Ageing and Disability and Home Care (ADHC) Joint Guideline

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/203701/MOU_ADHC_Health_2013.pdf

Format: PDF File (210.4 KB) Alternate Content: --

Subcategory: Collaborative Projects Resource Type: Clinical Guidelines

Added: 22 November 2013 Updated: 22 November 2013

2010 - 2020 National Disability Strategy - An initiative of the Council of Australian Governments

http://www.coag.gov.au/sites/default/files/national_disability_strategy_2010-2020.pdf

Format: PDF File

Subcategory: National Disability Insurance Scheme (NDIS) Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

National Disability Insurance Scheme

NDIS is the National Disability Insurance Scheme - a new way of providing community linking and individualised support for people with permanent and significant disability, their families and carers.

http://www.ndis.gov.au/

Format: Webpage

Subcategory: National Disability Insurance Scheme (NDIS) Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

National Disability Services policy paper on improving the experiences of people with disability in hospital.

http://www.nds.org.au/asset/view_document/979323768

Format: Webpage

Subcategory: National Disability Insurance Scheme (NDIS) Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

Accessible Mental Health Services for People with an Intellectual Disability: A Guide for Providers

http://3dn.unsw.edu.au/the-guide

Format: Webpage

Subcategory: Accessing Health Services Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Accessing NSW Health Services for People with Intellectual Disability

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0015/201732/Accessing-Health-Services-2017.pdf

Format: PDF File (1.5 MB) Alternate Content: Plain Text

Subcategory: Accessing Health Services Resource Type: Consumer Information

Added: 24 October 2013 Updated: 24 October 2013

Going To The Doctor - Accessible information for people with an intellectual disability

http://3dn.unsw.edu.au/content/going-doctor

Format: Webpage

Subcategory: Accessing Health Services Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

Provided there’s transport: transport as a barrier to accessing health care in NSW

https://www.ncoss.org.au/sites/default/files/121206health-transport-report.pdf

Format: PDF File

Subcategory: Accessing Health Services Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Being a Healthy Woman

This is a book to help women with intellectual disability learn more about their health. It also provides a list of resources on disability for women with intellectual disability, their family members, carers or health care professionals. It can be used as a teaching tool to help women with intellectual disability learn about their health.

http://www.health.nsw.gov.au/disability/Pages/being-a-healthy-woman.aspx

Format: Webpage

Subcategory: Consumer Information Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

Psychotropic Medication - Accessible Information for people with an intellectual disability and their carers

http://3dn.unsw.edu.au/content/psychotropic-medication

Format: Webpage

Subcategory: Consumer Information Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

Launch of Illawarra Shoalhaven Local Health District Action Plan

http://www.humanrights.gov.au/news/speeches/launch-illawarra-shoalhaven-local-health-district-action-plan

Format: Webpage

Subcategory: Action Plans and Frameworks Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Service Framework: to improve the health care of people with intellectual disability

The Service Framework is based on a tiered model of care and has been developed by NSW Health and the Department of Family and Community Services – Ageing, Disability and Home Care in collaboration with the NSW Council for Intellectual Disability. An extensive consultation with stakeholders has also helped of shape the Service Framework. The Service Framework aims to reduce health inequalities for children, adolescents and adults with intellectual disability and is NSW Health’s response to: promote a broader understanding of the health needs of people with intellectual disability and their right to effective services and care; and improve the quality, range, consistency, accessibility and integration of services necessary to meet the health needs of people with intellectual disability.

http://www.health.nsw.gov.au/disability/Pages/health-care-of-people-with-ID.aspx

Format: Webpage

Subcategory: Action Plans and Frameworks Resource Type: Frameworks

Added: 11 February 2015 Updated: 11 February 2015

SESIAHS Disability Action Plan 2010-2015

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/153490/sesiahsdisabilityactionpl.pdf

Format: PDF File (325.2 KB) Alternate Content: Plain Text

Subcategory: Action Plans and Frameworks Resource Type: Reports

Added: 29 June 2011 Updated: 13 February 2012

Directory of mental health services in New South Wales (www.wayahead.org.au)

http://www.wayahead.org.au

Format: Webpage

Subcategory: Health Services Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

Health Status of People with Disability

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/153466/disability_health_status.pdf

Format: PDF File (955.4 KB) Alternate Content: --

Subcategory: Health Services Resource Type: Reports

Added: 29 June 2011 Updated: 13 February 2012

Health Care in People with Intellectual Disability Guidelines

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0016/231514/Health_Care_in_People_with_Intellectual_Disability_Guidelines.pdf

Format: PDF File (602.4 KB) Alternate Content: Plain Text

Subcategory: Health Services Resource Type: Clinical Guidelines

Added: 9 July 2014 Updated: 9 July 2014

Learning Disabilities Resource List

PiF’s Learning Disabilities Resource List collates research, guidance, best practice and further contact details. It is intended to support the development of high quality patient information for people with learning disabilities

http://www.pifonline.org.uk/wp-content/uploads/2013/12/Learning-Disabilities-Resource-List-Dec-13-Final.pdf#zoom=100

Format: PDF File

Subcategory: Health Services Resource Type: External Links

Added: 19 June 2014 Updated: 25 July 2014

Provision of Services to People with an Intellectual Disability and Mental Illness - MOU & Guidelines

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/203699/MOU_-_Mental_Health_and_ID.pdf

Format: PDF File (48.5 KB) Alternate Content: --

Subcategory: Health Services Resource Type: Clinical Guidelines

Added: 22 November 2013 Updated: 22 November 2013

NSW Council for Intellectual Disability - Factsheets

The NSW Council for Intellectual Disability (NSW CID) has a number of fact sheets which discuss and provide information about issues important to people with intellectual disability, including how to stay healthy and get good health care. There are Standard Health Fact Sheets for families, advocates, disability workers and other professionals and Easy Health Fact Sheets are for people with intellectual disability.

http://www.nswcid.org.au/health-fact-sheets.html

Format: Webpage

Subcategory: Health Services Resource Type: External Links

Added: 11 February 2015 Updated: 11 February 2015

NSW Funding ABF

https://aci.health.nsw.gov.au/__data/assets/pdf_file/0009/230769/NSW-Funding-ABF.pdf

Format: PDF File (1.4 MB) Alternate Content: --

Subcategory: Health Services Resource Type: Presentations

Added: 26 June 2014 Updated: 26 June 2014

The United Nations Conventionon the Rights of People with Disabilities

https://www.humanrights.gov.au/our-work/disability-rights/international/united-nations-convention-rights-persons-disabilities

Format: Webpage

Subcategory: Health Services Resource Type: External Links

Added: 9 July 2014 Updated: 25 July 2014

ID Essentials

Building capability in NSW health services for people with intellectual disability: the Essentials

The purpose of the Essentials is to help improve health services to people with intellectual disability in NSW.

This resource will guide health services sector staff and other service providers to better understand and meet the complex and multiple health needs of people with an intellectual disability and their carers.

https://aci.health.nsw.gov.au/resources/intellectual-disability/id-essentials/home

Format: Webpage

Subcategory: ID Essentials Resource Type: Web Resources

Added: 22 August 2017 Updated: 22 August 2017

Intellectual Disability Network

Contact

Tracey Szanto
Intellectual Disability Network Manager

+61 2 9464 4632

tracey.szanto@health.nsw.gov.au