Measuring what matters: Health Outcomes and Patient Experience (HOPE)

Enabling patients to provide direct feedback about their health outcomes and experiences

NSW Premier's Award finalist – 2022

The state-wide Patient Reported Measures (PRMs) program enables patients to provide direct and timely feedback about their health experiences and outcomes that matter to them. PRMs are captured in patient surveys to give clinicians real-time insight into patient's needs and experiences at the point of care. This enables clinicians to understand what matters to patients and provide more efficient and effective care.

The first of its kind in NSW, the Health Outcomes and Patient Experience (HOPE) purpose-built IT platform, was launched in February 2021 to enable real-time data capture and use. This platform enables patients and carers to provide feedback about their outcomes and experiences from their personal electronic devices. The platform developed as a partnership between the ACI, eHealth NSW and Ministry of Health, to support the uptake and adoption of PRMs. HOPE continues to be scaled across Local Health Districts (LHDs), Specialty Health Networks (SHNs) and primary care locations. To date:

  • over 52,900 patient reported outcome measures completed
  • over 1,100 clinicians active
  • over 23,700 patients active
  • across 490 locations.

Qualitative evidence demonstrates that the program is streamlining everyday practice. Clinicians are also using survey results to forward referrals and PRM results to care providers/GPs for appropriate and timely follow up. Having a digitally enabled platform, HOPE, to collect and use PRMs in real-time during the pandemic was critical and continued to prove a huge value add for our clinicians, including the use of capturing symptoms for Long COVID. Clinicians were able to seamlessly use this as they used virtual care, or hybrid models of working to monitor their patients’ symptoms, burden, and plan accordingly.

HOPE is currently being integrated with the electronic Medical Record (eMR) and Patient Administration System (PAS) and is being rolled out in a staged approach across all LHDs throughout 2023. This integration will enable single sign on for clinicians and provide access to all PRM-related functionality within the eMR context. It will also enable read only access for “non-HOPE” users in the eMR, bringing greater visibility to PRMs in shared decision-making discussions across the patient journey.

After the endorsement of the PRM Program and HOPE platform by the PHN CEOs, we are working collaboratively with the PHNs and primary care stakeholders to capture requirements and prepare a business case for HOPE Phase 3 being interoperability with General Practice practice management software, Best Practice and Medical Director.

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