- The Inflammatory Bowel Disease (IBD) Transition Working Group was established in October 2019 and has members from paediatric and adult gastroenterology/IBD services. The group is being led by Dr Astrid-Jane Williams from the Liverpool Hospital IBD Service.
The group are currently finalising surveys to capture clinician and consumer experiences and to map current IBD services across NSW. With this information, work will commence on the transition checklist and education sessions. If you wish to be involved in the surveys or other aspects of the project, please contact Rachael Havrlant.
- The ACI Transition Care Service is a statewide care coordination service responsible for supporting young people (aged between 14–25 years) with chronic illness/disability as they move from children’s health services to adult health services. The service has a manager, three transition care coordinators based at Randwick, Westmead and Newcastle and three (part-time) support workers. The coordinators can assist young people from across NSW. For further information, please visit the website and share with interested colleagues.
- In October 2019, a working group was established to drive the Transition Indicators Project. This aims to identify outcome and experience measures for young people transitioning from paediatric to adult health services.
- The group has conducted a rapid evidence check on organisational models for transition and the report is in its final stages. Our next step is to participate in roundtable events with clinicians and consumers to gather their perspectives on developing meaningful and useful outcome indicators.
- The working group will work closely with other projects and groups who are also exploring outcomes measures for transition. If you are interested in this project and would like more information, please contact Rachael Havrlant.
Find out more about the Transition Care Network.