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Patient Reported Outcome Measures - PROMIS®
Often it is helpful to go through the PROMIS with the person and use it to start a conversation about how pain is impacting on their quality of life and rehabilitation progress. It can also be helpful to touch base with other clinicians that the person works with to see if they report or exhibit pain, and if this impacts on their rehabilitation efforts.
Review the person’s PROMIS-29/25 scores or, if completed more than six months ago, ask the person with pain to complete the PROMIS again. Download the PROMIS-29/25.
Here is a video on how to use and score the PROMIS 29+®
PROMIS® stands for 'Patient-Reported Outcomes Measurement Information System'
The PROMIS® profiles are a set of person-centred measures that evaluates and monitors physical, mental, and social health in adults and children. This measure was identified as the most suitable patient-reported measure, to serve as a convenient and appropriate screening tool for monitoring the level of interference of pain for people with a brain injury. The tool has a fixed number of items from seven PROMIS domains:
- depression
- anxiety
- physical function
- pain interference
- fatigue
- sleep disturbance
- ability to participate in social roles and activities (My Role)
There are several different versions of the PROMIS with varying numbers of items in each (PROMIS–10, PROMIS–29+, PROMIS– 43 and PROMIS–57). The PROMIS–29+ was selected in order to provide a sufficient sampling of each domain, without over-burdening the respondent. Visit the PROMIS website for more detailed information.
In the PROMIS–29+, there are two pain components – pain interference and pain severity. The respondent's scores are interpreted against standardised scores derived from the United States general population. The raw scores are converted to T-scores for comparison and identification of people whose self-reported functions are significant (more than one standard deviation worse than the reference population) and require monitoring or intervention.
Adults
Download the PROMIS-29+ adult screening guide for more detailed information about how to use, score and interpret the PROMIS-29+ as a screening tool.
In consultation with consumers and clinicians, the PROMIS-29+ was adapted for people with a spinal cord injury. The questions from the physical activity domains were excluded to accommodate for their different physical capacity – all remaining items of the questionnaire remain unchanged. Download this SCI version of the PROMIS-29+ as a screening tool with people who have a SCI.
Children
The PROMIS–25 has child and parent proxy versions, for use with children aged 5 to 17 years. Download the PROMIS–25 self-report screen guide for more detailed information about how to use, score and interpret the PROMIS–25 as a screening tool.
Download the PROMIS–25 self-report form (child or young person: 8 to 17 years).
Download the PROMIS–25 parent proxy form (child or young person: 5 to 17 years who is unable to complete the survey themselves).