Support people to receive care and die in their preferred place
Supporting people to receive care and die in their preferred place requires consistent open communication, health literate information, and access to relevant services and equipment. Consideration of the care setting and whether the clinical needs of the person can be met should interface with systems to prevent or minimise unnecessary hospital admissions. If home is the preferred care setting, consideration of availability of community health and support services to meet the person and their family and carer’s needs is important.
Processes are in place for identified and embedded local pathways which support people to:
Regular assessment of the appropriateness of the preferred setting is also encouraged.
Assessment of needs and planning for place of death is important in respecting the wishes of the person with life-limiting illness, their family and carers.
Assessment of the person’s needs, preferences and values; family and carer capacity to provide care; and availability of an appropriate and safe environment, services, resources and equipment to provide care should be undertaken.
Risk screening and assessment needs to be considered and issues addressed for any children or other vulnerable people living in the household.
Facilitate or refer to appropriate in-home support programs and ensure liaison with the person’s general practitioner or primary healthcare provider regarding their role and availability in after-hours care.
Aboriginal liaison officers or palliative care Aboriginal health workers may assist with enabling Aboriginal people to be supported to die on ‘Country’, where possible and if desired. Multicultural health workers can provide advice on cultural considerations and requirements, including burial timeframes.
Funeral Guide: Aboriginal Funerals
Information on Aboriginal funeral traditions and etiquette.
Funeral Zone Ltd | Information | 2019
Accelerated transfer to die at home plan (adult)
A form for integrated discharge planning that begins when a patient expresses the wish to die in their home environment.
Clinical Excellence Commission | Clinical tool | 2012
A resource for carers to ensure supports are in place when a patient expresses a wish to go home to die.
Clinical Excellence Commission | Information | 2016
Last Days of Life Toolkit: When someone dies at home what should you do?
A resources for carers which explains what they should do when someone dies at home.
Clinical Excellence Commission | Information | 2016
Enable paramedics to provide individualised care to a patient who has a life-limiting illness, in their home or in a residential aged care facility.
NSW Ambulance | Clinical tool | 2019
Procedures at time of death in hospital
Information for health professionals to inform discussions with family and carers when a child dies in hospital.
The Royal Children's Hospital Melbourne | Information | 2021
A booklet to improve the effectiveness of Aboriginal and Torres Strait Islander people's journey through the system for those that are affected by palliative illnesses.
Hunter New England Local Health District | Information | 2019
The Core Palliative Care Medicines List for NSW Community Pharmacy
Recommendations for community pharmacies to stock the five injectable medicines most commonly required at end of life.
NSW Ministry of Health | Information | 2019
Information for health professionals to inform discussions with family and carers regarding what happens when someone dies at home.
CareSearch | Information | 2020