Support effective conversations with the person, their family and carers
Communication that is open, respectful, culturally safe and agreeable enables effective conversations regarding expectations with the person, their family and carers. This ensures coordination of care is maintained with both internal and external care providers who commonly collaborate on End of life and palliative care. This type of communication centres around empowering the patient, their family and carers.
Processes are in place to provide the person, their family and carers with clear, health literate and appropriate information regarding available care, and how it may be provided. This includes setting expectations of the roles of care providers, the individual, families and carers. Considerations of cultural and linguistic needs is also recommended.
Open and respectful communication is important to improve the experience of the person with life-limiting illness, their family and carers.
Communication training tools, such as eLearning module SHAPE End of Life Conversations and Teach-back, can be used for end of life and palliative care discussions and planning, including discussing advance care directives and NSW Ambulance Authorised Palliative Care Plans.
Tools and resources to increase communication between patient, carer and the multidisciplinary team.
PalliAGED | Toolkit | 2020
Developed to address prognostic and end-of-life communication by health professionals, with key evidence-based recommendations.
The Medical Journal of Australia | Clinical tool | 2007
Last Days of Life: Information for patients and families
Assists with the provision of information and support to patients and families in the last days of life.
Clinical Excellence Commission | Toolkit | 2020
A guide for clincians to have quality, informative conversations with patients and families about the last days of life.
Clinical Excellence Commission | Toolkit | 2020
NSW Paediatric Palliative Care Programme
Provides information for patients, families and health professionals who care for a child with a life-limiting illness.
Sydney Children's Hospital Network | Toolkit | 2021
SHAPE End of Life Conversations - eLearning module
Provides a step by step communication framework for clincians to conduct effective end of life conversations with patients, families and carers.
Health Education and Training Institute | Educational | 2019
Simple, effective communication tool to check understanding of health terms and concepts, to assist with health literacy.
South Eastern Sydney Local Health District, Deakin University and University of Melbourne | Educational | 2018
What are 'end of life care' and 'palliative care'?
Basic explanations of the terms 'end of life' and 'palliative care' for patients, carers and health professions
NSW Ministry of Health | Information | 2020
This interview provides a powerful insight into how kindness and attention to detail can truly make a difference in the quality of end of life care.
Professor Rod MacLeod Retired Senior Staff Specialist, Palliative Care, HammondCare
Victoria Pieper Registered Nurse, Palliative Care Neringah Hospital, HammondCare
Medical decision-making and the ethics behind it
A seminar style video, with palliative care health professionals discussing ethical situations that may arise working in palliative care.
A/Prof Richard Chye Director, Sacred Heart, St Vincent’s Health Network