Essential Component 9
There is support for people experiencing
loss and grief

Grief is a normal response to loss and can affect all parts of your life

Why is this an Essential Component?

Evidence for inclusion

Supporting people through loss and grief is an essential component of care for people approaching and reaching the end of their lives, their families and carers.

Grief is a normal and inevitable response to loss, and can affect every part of a person’s life (ACGB, 2014). Grief occurs within social and cultural contexts in which it takes place.

Bereavement – the loss of a loved one through death – is a normal, common human experience. Although it is associated with a period of acute suffering, most people adapt to their loss over time (Stroebe et al, 2007).

Grief and bereavement support encompasses the 'entire experience of family members and friends in the anticipation, death, and subsequent adjustment to living following the death of a loved one' (Christ et al, 2003).

To deliver the highest standard of care there is a requirement to ensure that the patient, their family carers have access to bereavement care, information and support services.

Most people who experience grief do not require specialist counselling, but would benefit from reassurance and acknowledgement of their losses, and access to information.

Care providers across all settings can play a role in supporting families and carers through their loss and grief.

Intended beneficial outcomes

  • Grief and bereavement support is available.
  • Family members, carers and significant others are supported as they grieve.
  • Care providers across all settings are supported and resourced to support carers and families through their loss and grief.
  • Bereavement services are recognised as an essential component of care to family and carers.
  • Bereavement services are resourced and are a routine part of palliative and end of life care.
  • There are models and guidelines to support best practice in bereavement services including bereavement risk assessments.
  • There are partnerships with a range of community organisations able to support people who are anticipating or living with loss.
Grief is a normal response to loss and can affect all parts of your life

What tools/resources could support the implementation of this component?

The Agency for Clinical Innovation commissioned CareSearch (Palliative and Supportive Services, Flinders University) to identify local, national and international tools or resources that can potentially be used to implement each of the ten (10) Essential Components of Care within the Blueprint.

To be included, tools and resources were required to be in English, be applicable to the Australian context and be supported by evidence (such as published validation studies, clinical guidelines representing expert consensus, or advice from expert clinicians who were consulted).

The set of tools and resources provided is not intended to be exhaustive, nor is any one tool specifically recommended. Click here for more information on the methodology adopted by CareSearch in identifying these tools and resources.

Core Palliative Care Tools

  • After Death Bereaved Family Interview
    Description
    Designed to guide quality improvement, the tool can be adjusted to focus on one or care domains. The survey is not intended to be self-administered by the respondent (e.g. in mail-back surveys). Versions tailored to hospice, nursing home and hospital settings are available.
    Registration/Payment
    Registration is required but no fee is payable. Author, Joan Teno confirmed her agreement to use of the tools and provided copies of the survey instruments and toolkit scoring packet. The author should be cited and the copyright and permission notice (shown on the tool itself) must appear in the supporting documentation (8/4/2015).
  • Bereavement Risk Assessment Tool (BRAT)
    Description
    The BRAT identifies personal, interpersonal and situational factors that may place a caregiver or family member at greater risk for a significantly negative bereavement. May inform the care team of immediate concerns or guide bereavement resource allocation. BRAT is a 40 point list of both risk factors (36 items) and protective factors (4 items) that predict complicated bereavement and results in a risk rating, where level 1 represents no known risk to level 5 – high risk. In response to a query regarding the tool, a Californian service provider has invited collaboration on the use of this tool as apparently only one article has been published on its validity.
    Registration/Payment
    Registration and purchase of the tool is required to obtain a valid version of the tool, instructions and permissions.
  • Bereavement Risk Index (BRI)
    Description
    An assessment tool designed to distinguish levels of risk amongst bereaved individuals. The BRI is completed after the patient’s death by a primary care nurse, not one of the bereaved. The tool has a predictive approach using an 8 variable risk index.
    Registration/Payment
    No requirement for registration or payment. The modified version (Kristjanson et al, 2005) accommodating the Australian language and care context can be used with permission from the original author

Core Resources