Patient Experience and Consumer Engagement
We believe that the best innovation and healthcare improvement can only come from listening to and understanding what people need and want.
Our vision is for consumers and families to be equal partners in health care improvement in NSW.
What is experience-Based Co-design?
Experience-based co-design is a collaborative approach that brings consumers, families, carers and staff together to improve health services.
In experience-based co-design the people who use and deliver health services are engaged to share their experiences and design improvements together.
What Experience-Based Co-design Projects are we supporting?
We have used experience-based co-design to build collaborative partnerships and facilitate health service improvement in six different health settings in NSW.
The projects include:
- Hospitalisation of People with Intellectual Disability
- Rehabilitation Services
- Blood and Marrow Long-Term Follow-Up
- Young people with Urinary Incontinence
- Brain Injury Rehabilitation
- Adult Community Mental Health Services
What are the important features of Experience-Based Co-design?
There are three important features of experience-based co-design: ‘Experience’, ‘Co’ and ‘Design’
- ‘Co’ means that consumers, families and staff are working together from start to finish with equal say, decision making and responsibility
- ‘Experience’ highlights that we need to gather real stories from people to understand their experiences of what is going well and what would be better
- ‘Design’ clarifies that we are identifying the why, what and how to make things better in partnership with consumers, families and staff
Experience-Based Co-design Toolkit
This is a practical kit that lays out the why, when and how for different tools that can be used when improving health services.
- Five Whys
- Empathy Maps
- Experience Map
- Experience Questionnaire
- How Might We...?
- Journey Map
STORYTELLING IN HEALTHCARE
Stories capture people’s experiences and can make a real difference. Stories can raise awareness and are a powerful way to promote change and improve healthcare.
WHAT IS PATIENT EXPERIENCE?
Patient experience is a key part of high quality health care. There is also an important link between patient experience, safety and effectiveness.
Patient Experience Tools and Resources
- A comprehensive literature review on how best to engage consumers and communities
- A summary report of the key themes that emerged from the staff and consumer surveys
- The full report detailing comprehensive analysis of the feedback and key quotes
PATIENT EXPERIENCE AND CONSUMER ENGAGEMENT TEAM AT ACI
Manager, Patient Experience and Consumer Engagement
Clinical Networks, Taskforces and Institutes
- Aboriginal Chronic Conditions Network
- Acute Care for Children and Older People Stream
- Aged Health Network
- Anaesthesia Perioperative Care Network
- Blood and Marrow Transplant Network
- Brain Injury Rehabilitation Network
- Burn Injury Network
- Cardiac Network
- Chronic Care for Aboriginal People
- Chronic Care Network
- Clinical Genetics Network
- Diabetes and Endocrine Network
- Drug and Alcohol Network
- End of Life and Palliative Care Network
- Frailty Taskforce
- Gastroenterology Network
- Gynaecological Oncology Network
- Institute of Trauma and Injury Management
- Intellectual Disability Network
- Maternity and Neonatal Network
- Mental Health Network
- Musculoskeletal Network
- NSW Diabetes Taskforce
- Nuclear Medicine Network
- Nutrition Network
- Ophthalmology Network
- Paediatric Network
- Pain Management Network
- Primary Healthcare Institute
- Radiology Network
- Reducing Unwarranted Clinical Variation Taskforce
- Rehabilitation Network
- Renal Network
- Respiratory Network
- Rural Health Network
- State Spinal Cord Injury Service
- Stroke Network
- Surgical Services Taskforce
- Transition Care Network
- Urology Network
- Violence Abuse and Neglect Clinical Network