Spinal Cord Injury Resources
These resources relate to services which support recovery following spinal cord injury, monitor, manage and stabilise long term health impact, and facilitate individual independence, achievement of personal goals, and return to a fulfilling life in the community.
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My rehab, my journey website
https://aci.health.nsw.gov.au/projects/my-rehab
Updated: 15 October 2021
Format: Webpage
Pressure Injury Toolkit
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/pressure-injuries/pi-toolkit
Updated: 10 March 2022
Format: Webpage
NSW SSCIS Pathway for Management of Pressure Injuries in SCI – May 2016
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0017/313640/SSCIS_PI_ReferralPathway.pdf
Format: PDF File (255.5 KB) Alternate Content:
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Updated: 16 June 2016
Autonomic Dysreflexia Algorithm
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155143/algorithm.pdf
Format: PDF File (50.9 KB) Alternate Content:
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Updated: 29 June 2011
Treatment of Autonomic Dysreflexia for Adults and Adolescents with Spinal Cord Injuries (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155149/Autonomic-Dysreflexia-Treatment.pdf
Format: PDF File (1.6 MB) Alternate Content:
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Updated: 16 May 2014
Autonomic Dysreflexia Medical Emergency Card
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf
Format: PDF File (198.5 KB) Alternate Content:
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Updated: 2 June 2017
Video Presentation on Autonomic Dysreflexia by Dr James Middleton
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/autonomic_dysreflexia/video_presentation_on_autonomic_dysreflexia_by_dr_james_middleton
Updated: 25 January 2013
Format: Webpage
Emotional wellbeing toolkit: a clinician’s guide to working with spinal cord injury
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/psychosocial_strategy/emotional-wellbeing-toolkit
Updated: 12 April 2021
Format: Webpage
Guide for Health Professionals on the Psychosocial Care of People with Spinal Cord Injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155233/Guide-Psychosocial-Care.pdf
Format: PDF File (2.5 MB) Alternate Content:
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Updated: 16 May 2014
Improving Transitions to Community Living for People with Spinal Cord Injury in NSW: Final Report
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/553579/Improving-Transitions-to-Community-Living-for-People-with-SCI-Final-Report.pdf
Format: PDF File (2.5 MB) Alternate Content:
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Updated: 15 October 2019
Psychosocial Adjustment after Spinal Cord Injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155197/Psychosocial-Adjustment.pdf
Format: PDF File (2.1 MB) Alternate Content:
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Updated: 16 May 2014
SSCIS Psychosocial Strategy – Case Study 1 – Acute Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/166619/psychosocial_case_study_1.pdf
Format: PDF File (69.5 KB) Alternate Content:
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Updated: 21 June 2012
SSCIS Psychosocial Strategy – Case Study 2 – Rehabilitation Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/166620/psychosocial_case_study_2.pdf
Format: PDF File (65.1 KB) Alternate Content:
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Updated: 21 June 2012
SSCIS Psychosocial Strategy – Case Study 3 – Community Setting
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/166621/psychosocial_case_study_3.pdf
Format: PDF File (68.6 KB) Alternate Content:
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Updated: 21 June 2012
Referral Directory
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/referral-directory/referral-directory
Updated: 10 March 2022
Format: Webpage
SSCIS Principles for the Inter-Hospital Referral and Transfer Communications Process for Adult Patients with a Spinal Cord Injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0005/255407/sscis-interhospital-transfer-communication-v040213.pdf
State Spinal Seating Services
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0019/155251/seat.pdf
Format: PDF File (260.0 KB) Alternate Content:
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Updated: 22 February 2012
Spinal Seating Professional Development Program
The ACI State Spinal Cord Injury Service education website for seating and wheeled mobility has been established to assist health professionals gain knowledge, confidence and understanding in the practice of seating and wheeled mobility prescription. The site's audience is health professional graduates and students working with people who have acquired a spinal cord injury or similar neurological condition.
This education resource has been established as a component of the Spinal Seating Professional Development Program. Other components of the program include developing a broader network of health professionals and rehabilitation engineers who assess and prescribe seating and wheel mobility, improving competency, developing specialist education sessions and standardisation within the network’s specialist seating and wheeled mobility services.
https://aci.health.nsw.gov.au/networks/spinal-cord-injury/spinal-seating
Updated: 16 November 2020
Format: Webpage
About your contoured foam cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155257/usefoam.pdf
Format: PDF File (121.4 KB) Alternate Content:
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Updated: 22 February 2012
About your Jay cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/155263/usejay.pdf
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Updated: 22 February 2012
About your ROHO Enhancer cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155269/useroho2.pdf
Format: PDF File (103.5 KB) Alternate Content:
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Updated: 22 February 2012
About your ROHO Quadtro Select ® / Contour Select™ Cushion
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155275/useroho3.pdf
Format: PDF File (149.1 KB) Alternate Content:
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Updated: 22 February 2012
The SOS-HQ - Entire Questionnaire
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0018/155304/sos_hq_full.pdf
CIAP - Specialties - NSW Government
http://www.ciap.health.nsw.gov.au/home.html
Updated: 25 November 2020
Format: Webpage
EnableNSW
EnableNSW provides equipment, and in some cases attendant care, to assist eligible residents of NSW with a permanent or long-term disability by providing assistive technology in the areas of:
- mobility
- self care
- communication, and
- respiratory support.
EnableNSW is part of Health Support Services and is responsible for the administration of the NSW Health disability support programs including the:
- Aids and Equipment Program (formerly known as PADP)
- Specialised Equipment Essential for Discharge (SEED)
- Young People in Residential Aged Care (YPIRAC)
http://www.enable.health.nsw.gov.au
Updated: 31 March 2022
Format: Webpage
Health Insite
http://www.healthinsite.gov.au/topics/Spinal_Cord_Diseases
Updated: 25 November 2020
Format: Webpage
iCare
https://www.icare.nsw.gov.au
Updated: 25 November 2020
Format: Webpage
International Spinal Cord Society
http://www.iscos.org.uk/
Updated: 25 November 2020
Format: Webpage
MedlinePlus USA
http://www.nlm.nih.gov/medlineplus/spinalcordinjuries.html
Updated: 25 November 2020
Format: Webpage
Northcott Paediatric Spinal Outreach Service
http://www.northcott.com.au/index.php
Updated: 25 November 2020
Format: Webpage
Paraquad NSW (NGO)
http://www.paraquad.org.au/
Updated: 25 November 2020
Format: Webpage
Physiotherapy Exercises for people with a Spinal Cord Injury
http://www.physiotherapyexercises.com/
Updated: 25 November 2020
Format: Webpage
Queensland Spinal Injuries Unit
http://www.health.qld.gov.au/qscis/
Updated: 25 November 2020
Format: Webpage
Spinal Cord Injuries Australia (NGO)
http://scia.org.au/
Updated: 25 November 2020
Format: Webpage
Spinal Cord Injury Rehabilitation Evidence (SCIRE)
http://icord.org/documents/scire-spinal-cord-injury-rehabilitation-evidence/
Updated: 25 November 2020
Format: Webpage
Information on COVID-19 for people with spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/582824/ACI-Information-on-COVID-19-for-people-with-spinal-cord-injury.pdf
Format: PDF File (203.5 KB) Alternate Content:
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Updated: 28 July 2022
Inspiratory muscle training in people with spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/582825/ACI-SCI-CoP-IMT-Consumer-Guidance.pdf
Format: PDF File (281.5 KB) Alternate Content:
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Updated: 2 December 2022
Nutrition for Adults with Spinal Cord Injuries
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155185/ACI_0239-Nutrition-for-Adults-with-SCI_F.pdf
Format: PDF File (3.3 MB) Alternate Content:
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Updated: 18 September 2019
Dad has a spinal cord injury, and what happened next
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155287/dad_had_a_sci_Oct2406.pdf
Format: PDF File (1.6 MB) Alternate Content:
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Updated: 4 April 2017
How to stay healthy and well with a spinal cord injury - A tool for consumers from consumers
This tool has been written through the eyes of a person living with a spinal cord injury, so you can learn what to do to stay well and know what actions to take when health issues arise. The first step is usually to self-manage, but if this approach doesn’t work, an appropriate healthcare professional can help.
https://www.icare.nsw.gov.au/-/media/icare/unique-media/global-header/news-and-stories/news/health-maintenance-toolkit-a-guide-for-people-with-spinal-cord-injury/spinal-cord-injury-health-maintenance-toolkit.pdf
Updated: 25 March 2021
Format: PDF File
Autonomic Dysreflexia Medical Emergency Card
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0020/163442/Medical-Emergency-Card.pdf
Format: PDF File (198.5 KB) Alternate Content:
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Updated: 2 June 2017
Talking to Children about SCI
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/194399/Talking_to_children_about_SCI_-guide_for_families_A4_book_LR.pdf
Format: PDF File (5.8 MB) Alternate Content:
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Updated: 4 April 2017
What to do when you are hospitalised
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/155298/What-to-do-when-you-are-hospitalised.pdf
Format: PDF File (234.8 KB) Alternate Content:
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Updated: 15 April 2020
Ageing with Spinal Cord Injury (2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/224679/ACI-Ageing-with-SCI-FINAL.pdf
Fertility following spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0006/600855/ACI-SCI-Fertility-following-spinal-injury.pdf
Format: PDF File (383.2 KB) Alternate Content:
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Updated: 28 August 2020
Health Maintenance for Adults with Spinal Cord injury (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0007/155167/Health-Maintenance.pdf
Management of the Neurogenic Bladder for Adults with Spinal Cord Injuries (updated 2014)
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/155179/Management-Neurogenic-Bladder.pdf
Format: PDF File (1.4 MB) Alternate Content:
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Updated: 16 May 2014
Sexuality following spinal cord injury
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0004/349051/Spinal-sexuality-guideline-160317.pdf
Format: PDF File (405.7 KB) Alternate Content:
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Updated: 16 March 2017
Spinal cord injury bowel management
https://aci.health.nsw.gov.au/__data/assets/pdf_file/0008/807434/ACI-Spinal-cord-injury-bowel-management.pdf
Format: PDF File (900.9 KB) Alternate Content:
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Updated: 12 December 2022
Evidence and utilisation of spinal cord injury services in NSW
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/evidence-and-utilisation-of-spinal-cord-injury-services-in-nsw
Updated: 27 August 2020
Format: Webpage
Spinal Cord Injury Model of Care
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/model-of-care/spinal-cord-injury-model-of-care
Updated: 20 April 2017
Format: Webpage
Spinal Cord Injury Emotional Wellbeing Toolkit elearning Course
https://aci.health.nsw.gov.au/resources/spinal-cord-injury/learning-resources/emotional-wellbeing-elearning
Updated: 26 May 2021
Format: Webpage
The Chronic Pain and Brain Injury website
The Chronic Pain and Brain Injury website gives clinicians and patients the tools to manage pain after a brain injury or similar disability.
https://aci.health.nsw.gov.au/chronic-pain/brain-injury
Updated: 24 January 2023
Format: Webpage